Tamylin
New member
- Joined
- Mar 1, 2022
- Messages
- 2
- Reason
- DX UMND/PLS
- Diagnosis
- 06/2020
- Country
- US
- State
- CA
- City
- Greeneville
In 2020 I was diagnosed with PLS. At the time my Neurologist said he wanted to consult with ALS specialist, and that if I developed muscle atrophy in the next year he would change the diagnosis. Problem was that was the last time I would see him as my insurance changed and we moved out of state.
I have developed atrophy in hands,feet,shoulders, arms,and legs.
I went to a neurologist in new state and had what I considered to be the worst evaluation ever…. Never looked at my body, did reflex test on my Achilles’ tendon through my boots. I could go on and on.
My mother passed away fro ALS in 1972, I don’t believe my mother had the normal path as she walked almost to the end ( became bedridden 3 mos prior to death)
I’m just at a loss and don’t know what to do anymore. I’m getting weaker and less able to do things and it’s very hard to ignore.
I have developed atrophy in hands,feet,shoulders, arms,and legs.
I went to a neurologist in new state and had what I considered to be the worst evaluation ever…. Never looked at my body, did reflex test on my Achilles’ tendon through my boots. I could go on and on.
My mother passed away fro ALS in 1972, I don’t believe my mother had the normal path as she walked almost to the end ( became bedridden 3 mos prior to death)
I’m just at a loss and don’t know what to do anymore. I’m getting weaker and less able to do things and it’s very hard to ignore.