- Oct 28, 2007
My husband and I began this horrible rollercoaster ride in June of 2006. We both just retired with expectations of traveling and new experiences. We certainly have traveled from one doctor to another, from one MRI to another, from one nerve study to another, from one pain management doctor to another (well enough of that) I am sure everyone has a similar story to tell. The first diagnosis was ALS which could have knocked us both off our chairs, then after the nerve study came the second diagnosis PLS. Not knowing what PLS was we thought this is good at least it wasn't ALS (wrong). We are learning everyday how to cope and fear what is learing down the road for us. We are waiting for the second appointment at UPMC in Pittsburgh, PA. We are hoping this forum can shed some light on this horrible condition or maybe just a glimmer of hope at the light of a very dark tunnel. Symtoms at this point clonus of right foot, hyperflexia both legs, Babinski syndrom right knee, spasms both legs and sometimes arms with a skin crawling sensation and sleep pattern dimenishing rapidly. Just started Baclofen. Pretty depressing isn't it. Enough for now, thanks for listening.