FrJn
Active member
- Joined
- Mar 12, 2015
- Messages
- 71
- Reason
- PALS
- Diagnosis
- 04/2016
- Country
- US
- State
- Somewhere
- City
- Small Town
Good afternoon, all! Well, I’m now over a year in the diagnostic process and just yesterday (following gallons of blood work, MRI’s, EMG’s and NCV) I have received a “working” diagnosis of PLS from the head of an ALSA clinic He was very clear that this is a “working” diagnosis only to the extent that PLS frequently progresses to ALS. He stopped short of a diagnosis of ALS only due to insufficient clinical findings of LMN involvement. So, if anyone is wondering, that’s the reason for the date of diagnosis as well as the indication that I’m still going through the diagnostic process. Who knows what the future holds?
For a bit of background, I’m male and a Navy veteran now a civilian
I’ve been reading the posts in this forum since January of 2014, when my neurological condition could no longer be comfortably ignored. I began this diagnostic maze with several pre-existing conditions… 1. I can read… 2. I can comprehend what I read… 3. I’m not prone to health anxieties. Finding the sticky on the DIHALS sub-forum to be wonderfully informative, I made up my mind neither to register nor post here until after I had a diagnosis. The patience of so many members of this forum in interacting with DIHALS’ers has truly been amazing!
So, for over a year now, I've been reading, meditating on, and praying for, ever so many of you. Your needs, challenges, and victories have regularly been taken to His altar. I shall certainly continue those practices. Since my current diagnosis is PLS, I'll mostly confine myself to that sub-forum (at least to a point where my diagnosis may be changed). If ever you should need me for anything, please do feel entirely free to pop on down there and drop me a note.
Mike, I was literally in tears when I read of how your daughter was treated so spitefully by members of a community. Please know that the Gospel which I know is one of love, support, and encouragement. You and your daughter regularly are in my prayers. If ever there’s any way in which I can serve to bring healing to you or your daughter, please do let me know. Now, on an entirely different vein, Mike, your picture looks like the cockpit of a T-6 or a DHC-1. Am I anywhere near to being close?
John
For a bit of background, I’m male and a Navy veteran now a civilian
I’ve been reading the posts in this forum since January of 2014, when my neurological condition could no longer be comfortably ignored. I began this diagnostic maze with several pre-existing conditions… 1. I can read… 2. I can comprehend what I read… 3. I’m not prone to health anxieties. Finding the sticky on the DIHALS sub-forum to be wonderfully informative, I made up my mind neither to register nor post here until after I had a diagnosis. The patience of so many members of this forum in interacting with DIHALS’ers has truly been amazing!
So, for over a year now, I've been reading, meditating on, and praying for, ever so many of you. Your needs, challenges, and victories have regularly been taken to His altar. I shall certainly continue those practices. Since my current diagnosis is PLS, I'll mostly confine myself to that sub-forum (at least to a point where my diagnosis may be changed). If ever you should need me for anything, please do feel entirely free to pop on down there and drop me a note.
Mike, I was literally in tears when I read of how your daughter was treated so spitefully by members of a community. Please know that the Gospel which I know is one of love, support, and encouragement. You and your daughter regularly are in my prayers. If ever there’s any way in which I can serve to bring healing to you or your daughter, please do let me know. Now, on an entirely different vein, Mike, your picture looks like the cockpit of a T-6 or a DHC-1. Am I anywhere near to being close?
John
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