- Mar 27, 2010
- DX UMND/PLS
I have been dealing with symptoms since 1999/2000. For awhile I couldn't seem to convince a doctor that there was something wrong (leg weakness, irregular gait). But, because none of the signs were obvious none of the doctors took me seriously. Finally, after 2 brain MRI's, 1 spinal MRI, an EMG, and a nerve-conduction study, I went to a doctor who believed me and diagnosed me with Limb-Girdle Muscular Dystrophy in 1/2005. When he heard that my husband was retiring (Air Force) he said I needed to find a neurologist here in NE for my follow-ups. When I went to my doctor here, after the "dog and pony show" which showed much more progression, she stated that she didn't agree with that diagnosis. After another brain/spinal MRI with contrast, a spinal tap, another EMG, another nerve-conduction study and lots of blood tests, my doctor still couldn't figure it out and sent me to the Professor of Neurology at the University of CO. He stated, with no hesitation, that it was PLS in 9/2009. But now I'm wondering if that was correct.