Judith
Distinguished member
- Joined
- Jan 31, 2007
- Messages
- 341
- Reason
- DX UMND/PLS
- Diagnosis
- 12/2006
- Country
- US
- State
- CA
- City
- Yucca Valley
Has anyone been diagnosed w/PLS and have it affect the bulbar area only?
It seems that most people diagnosed w/PLS have it affecting the arms/legs and trunk area as well.
My symptoms started in Feb. of '04. It started out with my throat closing up and I would speak nasally. Then I started slurring my speech and now I use a writing board, cuz I can't be understood. My husband and my sister can make out some words, if they look at my lips.
Chewing and swallowing has gotten more difficult. And sometimes I drool.
At first, my neuro diagnosed me with PBP (progressive bulbar palsy). Then I had a 2nd opinion at UCLA and they diagnosed me w/PLS. My neuro now thinks PLS is a more correct diagnosed.
The EMG/NCS came out clean on both occasions.
I'm praying it stays isolated in the bulbar region and doesn't affect the other areas, or even turns into ALS.
It seems that most people diagnosed w/PLS have it affecting the arms/legs and trunk area as well.
My symptoms started in Feb. of '04. It started out with my throat closing up and I would speak nasally. Then I started slurring my speech and now I use a writing board, cuz I can't be understood. My husband and my sister can make out some words, if they look at my lips.
Chewing and swallowing has gotten more difficult. And sometimes I drool.
At first, my neuro diagnosed me with PBP (progressive bulbar palsy). Then I had a 2nd opinion at UCLA and they diagnosed me w/PLS. My neuro now thinks PLS is a more correct diagnosed.
The EMG/NCS came out clean on both occasions.
I'm praying it stays isolated in the bulbar region and doesn't affect the other areas, or even turns into ALS.