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Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,857
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
The V.A. has me diagnosed with "Presumptive PLS" (and the PLS doesn't stand for "please"). I have had a bad flare-up involving hip muscles for several weeks and this led me to knock on the door of my team's GP with the V.A. He let me in, examined me and decided he needed a CT scan on my lower trunk.

Got the results from Thursday's scan. I am impressed with the speed in which results are obtained from my V.A. clinic. I've had blood work taken at 0830 and the doc was reading the results to me 30 minutes later at 0900.

The "Aw, Shucks!" is that the scan was unremarkable with the exception of normal degeneration. My GP wrote, "The important finding is that no stenosis involving a nerve was present at any level." Aw, shucks! All of this time that I've been banking on them (the doctors) finding a pinched nerve has proven fruitless! Aw, shucks!

I paid my cramp candy bill so I no longer feel bad about taking it without having paid for it. The combo of baclofen and gabapentin taken together has proven to be of some benefit. The secret for me is keeping them both at a low dosage.

Blood work good - no thyroid, B12 or other issues... Aw, shucks!
MRI of brain, t-spine and c-spine clear... Aw, shucks!
EMG/NCV normal... Aw, shucks!
CT scan unremarkable... Aw, shucks!

PLS is like a ghost. Effects of its presence are visible but it is not. (Okay, it can be seen when they open up your head upon autopsy.) My head remains closed for the present!
 
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abbas child

Very helpful member
Joined
Feb 29, 2008
Messages
2,168
Reason
PALS
Diagnosis
07/2007
Country
US
State
Maryland
City
Eastern Shore
Re: Another "Aw, Shucks!" Moment

Dear Kim... I am both glad your results came in fast, and also very sorry a "good" and definite diagnosis isn't yours... yet. Stay alive, please, and don't give them the fun of finding out anything via an autopsy.

And may your cramp candy never let you down. Hugs.
Ann
 

brooksea

Legendary member
Joined
Sep 27, 2006
Messages
5,226
Reason
Other
Country
HM
Re: Another "Aw, Shucks!" Moment

Shucks, man! So much for your theory! Hope you don't get too many cramps "in all the wrong places."
 

tdamess

Very helpful member
Joined
Jul 29, 2009
Messages
1,297
Reason
Loved one DX
Diagnosis
07/2009
Country
US
State
ma.
City
halifax
Re: Another "Aw, Shucks!" Moment

The V.A. has me diagnosed with "Presumptive PLS" (and the PLS doesn't stand for "please"). I have had a bad flare-up involving hip muscles for several weeks and this led me to knock on the door of my team's GP with the V.A. He let me in, examined me and decided he needed a CT scan on my lower trunk.

Got the results from Thursday's scan. I am impressed with the speed in which results are obtained from my V.A. clinic. I've had blood work taken at 0830 and the doc was reading the results to me 30 minutes later at 0900.

The "Aw, Shucks!" is that the scan was unremarkable with the exception of normal degeneration. My GP wrote, "The important finding is that no stenosis involving a nerve was present at any level." Aw, shucks! All of this time that I've been banking on them (the doctors) finding a pinched nerve has proven fruitless! Aw, shucks!

I paid my cramp candy bill so I no longer feel bad about taking it without having paid for it. The combo of baclofen and gabapentin taken together has proven to be of some benefit. The secret for me is keeping them both at a low dosage.

Blood work good - no thyroid, B12 or other issues... Aw, shucks!
MRI of brain, t-spine and c-spine clear... Aw, shucks!
EMG/NCV normal... Aw, shucks!
CT scan unremarkable... Aw, shucks!

PLS is like a ghost. Effects of its presence are visible but it is not. (Okay, it can be seen when they open up your head upon autopsy.) My head remains closed for the present!

please keep your head closed for a long time
 

mare

Senior member
Joined
Jun 5, 2008
Messages
771
Reason
Lost a loved one
Country
US
State
PA
City
Lafayette Hill
AW, SHUCKS! :sad::sad::sad:
 

Tokahfang

Moderator emeritus
Joined
Jan 31, 2010
Messages
791
Diagnosis
07/2009
Country
US
State
VA
City
Richmond
We are the backwards people. Doctors read us perfectly clean test results with a huge smile and don't understand why we aren't smiling too.
 

johnnyliverpool

Distinguished member
Joined
May 30, 2010
Messages
145
Reason
Learn about ALS
Country
uni
State
wales
City
swansea
zaph..i feel sorry for neuro"s, cos they dont neuro....and the try hard to make you think they neuro, but they just dont neuro..all that training and all that money and they just dont neuro...sad.....there neuro nearer kneuroing now than ever.............maybe its better not to neuro..i dont neuro........i neuro nothing........johnny
 

AKmom

Senior member
Joined
Jun 2, 2010
Messages
608
Reason
DX UMND/PLS
Diagnosis
11/2009
Country
US
State
Alaska
City
Wasilla
yup...I know how you feel. Its frustrating. Don't have anything else to say really...other than hang in there!
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,743
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
AWE SHUCKS!

i think were the only group of people who hope for dirty test results............sad really:(


johnnyneuro.............once again you have cracked me up:lol::lol::lol:
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,857
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
Johnny, Thanks, mate! You made me feel a bit more chipper!
 

Chief

Member
Joined
Feb 14, 2010
Messages
23
Reason
DX UMND/PLS
Diagnosis
07/2009
Country
US
State
California
City
Fontana
yup...I know how you feel. Its frustrating. Don't have anything else to say really...other than hang in there!

Funny that's what my Neuro say's too!

:shock:
 

Alyoop

Very helpful member
Joined
Jul 5, 2010
Messages
1,796
Reason
DX UMND/PLS
Country
NZ
State
NZ
City
NZ
Yea Olly.We are very wierd. I came out of my last MRI back in March, and burst into tears when they said it was normal. I was hopeing for MS, at least I could have answers and some therapy. You other People wqith PLS are the ONLY ones who will ever understand this phenomenon. Its just such a long ride to "discovery" if we really ever get there.
It drives me crazy if I think about it. Nothing like being an Ostrich instead.
Maybe we should all have a worldwide booze up and meet somewhere in the middle of the world.... say Vanuatu? Oh that would be a laugh. Ha ha.

Its sooo hot here, wish I could have some of the snows thats about in the UK.
love to all you great people, thanks for the support. Have a great Christmas.
Aly
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,743
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
aly i was exactly the same.....wanted mri to show ms.
its so hard to understand and explain to people tests are ok when in fact such devestation is going on in our bodies.

ooohhh what i would do for some sun......more heavy snow expected for tomorrow and friday......yip-pee
 
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