Kenny H
Member
- Joined
- May 22, 2008
- Messages
- 22
- Reason
- DX UMND/PLS
- Diagnosis
- 02/2005
- Country
- US
- State
- RI
- City
- Providence
I have had PLS for almost 4 years. My legs are effected the most...very stiff and with difficulty going down steps and walking on uneven surfaces. One PT described me as having no brakes! However, within the last 6 months, it has effected my speech. A speech therapist described it as a slowing down of your tongue and mouth muscles. It is worse when I am fatigued or stressed. Words that may have been tongue twisters in the past [statistics, Massachusetts] are sometimes near impossible to get out. I am in sales and do some public speaking....needless to say, this has had a negative impact. Phone conversations are sometimes the worst.
The symptoms, like all the PLS stuff, does seem to vary. Sometimes it is like nothing has changed and other times..yikes. It can even happen over the duration of a conversation! Anyone out there having similar experiences? I am looking for coping mechanisms...any meds that may have worked...any types of excercises or alternative therapies.
Kenny
The symptoms, like all the PLS stuff, does seem to vary. Sometimes it is like nothing has changed and other times..yikes. It can even happen over the duration of a conversation! Anyone out there having similar experiences? I am looking for coping mechanisms...any meds that may have worked...any types of excercises or alternative therapies.
Kenny