I was diagnosed in 1975 with MND then changed to SMA, then changed to possible Kuckelberg-Weillander (sp?), then back to SMA, and finally in 2002 to Brachial Amyotrophic Diplegia. I was about 32 years old in 1975 and now I am 65. BAD is a motor neuron disease that is very slow moving and affects the shoulder girdle and arms. My DRs. say it will not be the cause of my passing.
I have entertained many fasciculations (twitching) over my entire body from face to calves. I now have atrophy in my hands, biceps, shoulder blades, pectoral muscles. I am still using the muscles that I own and refuse to give this affliction an easy fight. Even DRs get it wrong and are human so have faith. I exercise on a treadmill at least 1-2 miles a day. I get frustrated because I love being physical. I do lite stretching exercises daily. Eat healthy, exercise in moderation and love your life! Best wishes to you......I welcome others who wish to exchange notes. I would love to chat with someone who BAD or actually, anyone else. Al in Cal