jcharlotte
New member
- Joined
- Sep 18, 2014
- Messages
- 7
- Reason
- Lost a loved one
- Country
- US
- State
- North Carolina
- City
- Charlotte
Hello to everyone in this forum and thank you in advance if you take the time to answer this message.
I am 43 years old.
My mother passed away from ALS at age 57.
About three weeks ago I developed overall stiffness in my hands and fingers, like they felt they had glue in them when opening and closing them, but no pain. The fingers and hands wanted to "curl up" on their own or into a fist and felt stiff when flexing them. I also had some forearm fatigue. I also notice it in the thumbs when trying to text.
The most noteable symptom was and still is, a decreasing ability to type at work. The finers just don't seem to do what I want them to do. The sensations when trying to type is similar to if someone squeezed your lower forearm to make your fingers curl, but again no pain, just stiffness and lack of dexterity. They seem to almost lock in place when I'm trying to type. This is in both hands, maybe a bit more in the right but not a lot. I can roll my fingers up and down fine if I put them out straight on the table, and I don't seem to have a noticeable strength loss in terms of opening things. But when I try to type they just dont move to the keys like I want or ask them to do.
Other symptoms which may or may not be related to this (could by from worry/anxiety, other issues, etc) include:
- Achiness in the upper gluteal region and around a bit into the hips
-Mild weight loss (about 4 pounds in 3 weeks)
- Mild and infreqent burning sensation in the shin/top of the feet
- Some stiffness in upper back/trapezius region
- Feeling of weakness generally in the legs - but this is similar to what one might feel if under intense stress from facing something similar to this
The symptoms have seemed to progress over the three week period.
Initial bloodwor at my doctor came back fine and I've been referred to a neurologist. So it seems I am starting down the same road as all of you who either end up having ALS or don't
If anyone has an opinion one way or another I would appreciate it.
Good luck to all of you battling this awful disease. What I went through in helping my mom gave me an all to accurate picture of what you are going through.
I am 43 years old.
My mother passed away from ALS at age 57.
About three weeks ago I developed overall stiffness in my hands and fingers, like they felt they had glue in them when opening and closing them, but no pain. The fingers and hands wanted to "curl up" on their own or into a fist and felt stiff when flexing them. I also had some forearm fatigue. I also notice it in the thumbs when trying to text.
The most noteable symptom was and still is, a decreasing ability to type at work. The finers just don't seem to do what I want them to do. The sensations when trying to type is similar to if someone squeezed your lower forearm to make your fingers curl, but again no pain, just stiffness and lack of dexterity. They seem to almost lock in place when I'm trying to type. This is in both hands, maybe a bit more in the right but not a lot. I can roll my fingers up and down fine if I put them out straight on the table, and I don't seem to have a noticeable strength loss in terms of opening things. But when I try to type they just dont move to the keys like I want or ask them to do.
Other symptoms which may or may not be related to this (could by from worry/anxiety, other issues, etc) include:
- Achiness in the upper gluteal region and around a bit into the hips
-Mild weight loss (about 4 pounds in 3 weeks)
- Mild and infreqent burning sensation in the shin/top of the feet
- Some stiffness in upper back/trapezius region
- Feeling of weakness generally in the legs - but this is similar to what one might feel if under intense stress from facing something similar to this
The symptoms have seemed to progress over the three week period.
Initial bloodwor at my doctor came back fine and I've been referred to a neurologist. So it seems I am starting down the same road as all of you who either end up having ALS or don't
If anyone has an opinion one way or another I would appreciate it.
Good luck to all of you battling this awful disease. What I went through in helping my mom gave me an all to accurate picture of what you are going through.