1981driver
New member
- Joined
- Sep 24, 2018
- Messages
- 3
- Reason
- Learn about ALS
- Country
- US
- State
- California
- City
- Orange
Hi all,
I am so very hopeful that somebody can either put my mind at rest or give me the strength I need to really push my doctor for some more information.
I am a 36 year old female. For the past few weeks I have noticed that I am having muscle twitching or "fasciculations' all over by body.
I have noticed these in my hands, calf muscles, thighs, butt, groin, shoulder, even sometimes my eyelids. I am not sure if I have had these for a long time and ignored/not noticed them or if they are new. Other symptoms are as follows:
1) Fasciculations all over the body
2) Cramping in my feet for the past few months
3) Feeling weakness/tingling/numbness in left leg and top of foot
4) Feeling of weakness/tingling/numbness/dead arm in left arm and sometimes feeling of a cold shoulder
5) Doctor says I have "brisk reflex"
I went to see a neurologist this morning who was a little abrupt and rude and didn't comfort me or reassure me at all. He has noted on my after visit summary that I have brisk reflex, no atrophy or weakness. He has referred me for an MRI of the brain and also a nerve conduction test.
I am so so so so afraid that these symptoms sounds like early onset ALS.
Could anybody please respond and let me know your thoughts? I am beside myself with worry and have read so many conflicting reports of symptoms. I have read that sensory issues are not associated with ALS. I have then read that some people have tingling/perceived weakness. I have read that twitching all over the body isn't usually indicative of ALS and then in other places I read that all over/body wide tingling can be an early symptom!
My left arm feels pretty weak/strange but I can still write, drive, pick up things and don't have any trouble using it. But perhaps this is because it is early onset? I really don't know and it's making me so anxious. I cannot stop crying and having panic attacks. I hope someone can give me some guidance.
Thanks so much in advance and apologies for the long post. :-(
I am so very hopeful that somebody can either put my mind at rest or give me the strength I need to really push my doctor for some more information.
I am a 36 year old female. For the past few weeks I have noticed that I am having muscle twitching or "fasciculations' all over by body.
I have noticed these in my hands, calf muscles, thighs, butt, groin, shoulder, even sometimes my eyelids. I am not sure if I have had these for a long time and ignored/not noticed them or if they are new. Other symptoms are as follows:
1) Fasciculations all over the body
2) Cramping in my feet for the past few months
3) Feeling weakness/tingling/numbness in left leg and top of foot
4) Feeling of weakness/tingling/numbness/dead arm in left arm and sometimes feeling of a cold shoulder
5) Doctor says I have "brisk reflex"
I went to see a neurologist this morning who was a little abrupt and rude and didn't comfort me or reassure me at all. He has noted on my after visit summary that I have brisk reflex, no atrophy or weakness. He has referred me for an MRI of the brain and also a nerve conduction test.
I am so so so so afraid that these symptoms sounds like early onset ALS.
Could anybody please respond and let me know your thoughts? I am beside myself with worry and have read so many conflicting reports of symptoms. I have read that sensory issues are not associated with ALS. I have then read that some people have tingling/perceived weakness. I have read that twitching all over the body isn't usually indicative of ALS and then in other places I read that all over/body wide tingling can be an early symptom!
My left arm feels pretty weak/strange but I can still write, drive, pick up things and don't have any trouble using it. But perhaps this is because it is early onset? I really don't know and it's making me so anxious. I cannot stop crying and having panic attacks. I hope someone can give me some guidance.
Thanks so much in advance and apologies for the long post. :-(