wewillbeatthis
Distinguished member
- Joined
- Aug 10, 2005
- Messages
- 185
Hello my second family!
Happy Holidays to all! I hope everyone has enjoyed these last few days with family and friendsd. I wish you all a Happy and Safe New Year!
So we found out that we are having a baby and my husband and I are so happy as well as the rest of the family... Dad can't wait to have a baby around but some days he seems not so happy about it. Like he is scared or something I don't know and don't get it....
Well my family said something that really got to me and hurt me and has been eating at me for like a week. They told me don't drive with dad if you don't have to. We love you and him and worry about him driving. Now you are expecting and have another life to worry about... I did not get it and sort of fought with them about it. I got things like he could have a seziure, not stop on time, loss control of the wheel, step on the gas or the brake late... Where was this all coming from...
Dad has the following
Gait very bad and has been this way for 5 years he uses a cane to go up and down stairs and in and out of house and in bathroom and bedroom... Rollator around the house, shopping, working, and resturants, carriages at the big stores...
Speech most days good by evening it is slow with a slight slur for the past two years... Some days very slow and nasal and wet and slurred usually this happens when he does not drink enough water or drink anything much for that matter and builds up a great deal of phlegm and this makes the nasal speech much worse and he gurrgles mid sentence and gets frustrated or has to repeat because he gets mad...
Swolling and eating eats tons as he always has with little to know problems... For example Christmas Eve no problem at all and ate tons... Christmas day knowing what was said and in a bad mood and eating by candle lite dad was coughing a bit and had some trouble with dinner, drinking and eating. One track mind and his mind took over and tightened all the muscles up....
We got home and within an hour the speech was better and he had eaten an entire hughe salad without a problem... what is the deal with this why does it come and go and happen?
Can we just chalk these days up to bad days and that tomorrw is a new day or do we need to get things looked at and ensure we have no prblems?
I am sorry to go on and on I am frustated why someone would say sezuire or whatever else they said. ALS and sezuires why would one say this because his speech is a little slurred today what? He drives and has total control on the car in reg weather and even snow.... I think these are people that just don't understand that as anything or anyone else we have good and bad days...
My questions to all of you:
How importat is Range of Motion exercises? He has not been doing them and can this effect everything?
How important is it to drink a great deal of fluids to help the phlegm and palate which in turn causes coughing, voice problems, and eating issues?
Clinic in September was great was told going on 5th year and strength is great, only issues is a tighter ankles and legs, gait slower, balence, occasional nasal voice due to the palate perhaps being spastic....
Please write back with your thoughts something to be concered about or something that can be managed?
Jen
Happy Holidays to all! I hope everyone has enjoyed these last few days with family and friendsd. I wish you all a Happy and Safe New Year!
So we found out that we are having a baby and my husband and I are so happy as well as the rest of the family... Dad can't wait to have a baby around but some days he seems not so happy about it. Like he is scared or something I don't know and don't get it....
Well my family said something that really got to me and hurt me and has been eating at me for like a week. They told me don't drive with dad if you don't have to. We love you and him and worry about him driving. Now you are expecting and have another life to worry about... I did not get it and sort of fought with them about it. I got things like he could have a seziure, not stop on time, loss control of the wheel, step on the gas or the brake late... Where was this all coming from...
Dad has the following
Gait very bad and has been this way for 5 years he uses a cane to go up and down stairs and in and out of house and in bathroom and bedroom... Rollator around the house, shopping, working, and resturants, carriages at the big stores...
Speech most days good by evening it is slow with a slight slur for the past two years... Some days very slow and nasal and wet and slurred usually this happens when he does not drink enough water or drink anything much for that matter and builds up a great deal of phlegm and this makes the nasal speech much worse and he gurrgles mid sentence and gets frustrated or has to repeat because he gets mad...
Swolling and eating eats tons as he always has with little to know problems... For example Christmas Eve no problem at all and ate tons... Christmas day knowing what was said and in a bad mood and eating by candle lite dad was coughing a bit and had some trouble with dinner, drinking and eating. One track mind and his mind took over and tightened all the muscles up....
We got home and within an hour the speech was better and he had eaten an entire hughe salad without a problem... what is the deal with this why does it come and go and happen?
Can we just chalk these days up to bad days and that tomorrw is a new day or do we need to get things looked at and ensure we have no prblems?
I am sorry to go on and on I am frustated why someone would say sezuire or whatever else they said. ALS and sezuires why would one say this because his speech is a little slurred today what? He drives and has total control on the car in reg weather and even snow.... I think these are people that just don't understand that as anything or anyone else we have good and bad days...
My questions to all of you:
How importat is Range of Motion exercises? He has not been doing them and can this effect everything?
How important is it to drink a great deal of fluids to help the phlegm and palate which in turn causes coughing, voice problems, and eating issues?
Clinic in September was great was told going on 5th year and strength is great, only issues is a tighter ankles and legs, gait slower, balence, occasional nasal voice due to the palate perhaps being spastic....
Please write back with your thoughts something to be concered about or something that can be managed?
Jen