Louie
New member
- Joined
- Sep 12, 2019
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- State
- NS
- City
- Sydney
Hi my name is Louie I’m from Sydney Australia
I’m 45 yr old with 5 kids. I’ve been following this forum for a year now and envy the the way those dx with this disease deal with it. If I have what i believe I have I’m afraid I will totally lose whatever mind I have.
14 months ago I got fasciculations in my right tricep and within 3 months it was in all 4 limbs
An emg 1 year was clean with no other issues
2 weeks ago I had severe pain in my right elbow joint Now the pain is almost gone but I’ve been left with very visible atrophy around that elbow which my family can easily confirm I do weights and haven’t noticed any weakness
Now I’m certain I have ALS. Neuro next week.
I wanted feedback to see if anyone else has similar progress?
I’m 45 yr old with 5 kids. I’ve been following this forum for a year now and envy the the way those dx with this disease deal with it. If I have what i believe I have I’m afraid I will totally lose whatever mind I have.
14 months ago I got fasciculations in my right tricep and within 3 months it was in all 4 limbs
An emg 1 year was clean with no other issues
2 weeks ago I had severe pain in my right elbow joint Now the pain is almost gone but I’ve been left with very visible atrophy around that elbow which my family can easily confirm I do weights and haven’t noticed any weakness
Now I’m certain I have ALS. Neuro next week.
I wanted feedback to see if anyone else has similar progress?