Status
Not open for further replies.

Nickola

Member
Joined
Aug 22, 2014
Messages
11
Reason
Learn about ALS
Country
CA
State
Quebeq
City
Montreal
Hello people,just joined the forum today.I don`t want to show silly and start bombarding you with stupid questions.But i am so scared man.This is my story:

6 months ago,i got into a fight,a big fight.I ended up in the hospital,doing reconstructive surgery for my broken facial zygomatic fractures and my orbital floor.I received many hits on my head and had concussion..
The last 4 months though,i noticed that the way i am walking,is diefferent.My right leg feels weak,unbalanced and sometimes numb.It feels like it got shorter suddenly by 1cm or something than the left one.My way of walking and moving became more clumsy.The saame with my right arm,feels weak and numb sometimes,specially my fingers.I don`t got any problems lifting yet though...Before i go to sleep and when i wake up i feel many spasms through my leg.
Plus my way of talking changed(but i dont know if this is a sign of als,or because after the fight my joints have changed and my whole teeth constructure).Many times i am biting my tongue and my teeth hit each other when i am talking,as i can not spell some words correctly if i speak too fast..
Too many lights make me feel dizzy.I am so scared guys.Please don`t take me wrong and give me some answers.Is it early ALS symptomps? I got these symptoms 4 months now.
Thank you in advance
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
11,015
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
I do not think this is ALS. But you should be seeing a neurologist. After the trauma you describe there certainly could be neurological consequences and it is important to get it checked out. Please don't worry about ALS. Worry about getting yourself taken care of properly.
 

Clearwater AL

Very helpful member
Joined
Aug 28, 2013
Messages
2,149
Reason
PALS
Diagnosis
12/2016
Country
US
State
NC
City
Get Real
Edited. Hopefully you can find a good post trauma specialist.
 

Atsugi

Legendary member
Forum Supporter
Joined
Jan 11, 2011
Messages
5,200
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
FL
City
Orlando
Nikki knows what she's talking about. But let me pile on, anyway.

First, you don't have ALS.
You did NOT describe symptoms of ALS.
Last, you don't have ALS.

As Nikki said, you should see a neurologist about this traumatic injury.
 

Nickola

Member
Joined
Aug 22, 2014
Messages
11
Reason
Learn about ALS
Country
CA
State
Quebeq
City
Montreal
Nikki knows what she's talking about. But let me pile on, anyway.

First, you don't have ALS.
You did NOT describe symptoms of ALS.
Last, you don't have ALS.

As Nikki said, you should see a neurologist about this traumatic injury.
Thanks a lot guys,i hope it is not als.I am being through a lot this year,and the thoughts of me having this decease are driving me crazy,and i admire people having this already,and wanna give them courage and congratulations.They are real badass3s.
 

MaxEidswick

Legendary member
Joined
Sep 1, 2013
Messages
5,567
Reason
PALS
Diagnosis
08/2013
Country
US
State
Texas
City
Pinehurst
>the thoughts of me having this decease are driving me crazy,

read #10 carefully:

#10 Anxiety can be a real problem that can endanger your physical health. It is what leads many folks here to this forum -- it is a self-fueling fire. Try to avoid using google and/or this forum if you can -- if you cannot stay away and off this forum it should tell you something important!


Hi -- ALS/MND is a scary disease to consider/fear. We empathize. This note is not to deter you from your investigations, but just so thoughts on how we can help each other ...


Here are some first considerations that may help:

#1 - Read the STICKIES at the top of this forum. Many questions are answered there. 99% of new questions are addressed.


#2 We are not doctors or diagnosticians, but people who are dying from or caring for people with ALS. Some of us have to type with one hand, one finger, via dictation, or even with our eyes, so reading/replying to the anxiety-ridden can be very tiring.


#3 if you think you have a motor neuron issue, see your Primary Care Provider and get a referral to a motor neuron qualified neuro, note: most are NOT ALS/MND (Motor Neuron Disease) experienced!


#4 an EMG, properly done, is the gold standard test for ALS. But also, an abnormal EMG can indicate HUNDREDS of other, non-fatal, diseases. So listen to your doctor.


#5 ALS does NOT present with pain, cramps, or fatigue. In ALS, you feel perfectly normal but your muscles simply won't work. Typically, the first sign of ALS is a foot or a hand that inexplicably just won't lift up. It doesn't hurt or feel weak, it just is limp. That is paralysis.


#6 ALS is about failing, not feeling, so forget the "feeling" symptoms


#7 If your main issue is twitching go to the bfs forum. If you have weird neuro symptoms try neurotalk. There are also forums for health anxiety.


#8 Your doctor is wise to look at other diseases. ALS is rare. In order for it to be ALS, it has to be nothing else.


#9 Many of us cough/gag/choke and/or can no longer speak. It is difficult to have anxious people constantly chasing this disease, when we can't escape it. There seems to be this cult of ALS wannabees/groupies. You don't want to fall into that bucket do you?


#10 Anxiety can be a real problem that can endanger your physical health. It is what leads many folks here to this forum -- it is a self-fueling fire. Try to avoid using google and/or this forum if you can -- if you cannot stay away and off this forum it should tell you something important!


Lastly, if you are still interested, go to alsa dot org or mda dot org ...


We sincerely hope you do not need to be here! But find out first. If you do need to be here let me say "Welcome, sorry you are here!"


-----
Max - Monday, August 18, 2014 12:03:01 PM
-----
onset 9/2010, diagnosed with ALS by Stanley Appel 8/29/2013
It Is What It Is ...

.
 
Status
Not open for further replies.
Top