Hi all, I could use some thoughts on my situation.
I am a 30 year old female. In April 2015, I started some fertility treatments. I did an ovulation trigger shot, and 24 hours later I noticed weakness in my hands, arms, and legs. I did my first trigger the month before and had no issues. After the 2nd one (April), the weakness started and progressed pretty uncomfortably and badly. I felt like I could barely cut into my eggs. Walking was possible, but it seemed like my legs were dragging. It's a weakness that I have a hard time explaining to people. Over the course of probably 3-4 months, it persisted and was accompanied by twitching, both visible and not. Mostly in my legs, and sometimes my pinky toe would randomly do a little twitch dance. The twitching pretty much only happened when I would lay down to go to sleep (which is when the weakness would be even more unbearable). The symptoms were later joined by some pain and tingly feelings in my legs. There was one day I had a weird pain on top of my foot that brought me down to the ground. Just as quick as it came, it was gone.
Anyway, I stopped all fertility treatments and sought a neurologist. He didn't seem to be concerned about ALS. He did an MRI and EMG. Both came out normal. My primary care dr also ran a slew of tests. Vitamin D was normal as well as everything else. I've been taking Vit. D3 anyway as one of my fertility supplements. Dr. also ruled out Lymes.
For the past 3 months or so, I've been feeling 90% better. It's rarely been an issue, so I figured whatever happened (maybe something from the injection) finally worked its way out of my system. I still got the weakness sometimes at night when laying down, but overall I felt like myself again and got ALS out of my mind.
Two months ago I took hormones to start my fertility treatments again. I haven't done the injection yet (that will be in a few days). I felt some weakness a few days after taking the pills (letrozole), but it went away fairly soon. I took them again last week, and with the exception of one bad night (tons of twitching in my legs and discomfort & weakness in legs), I was good.
Yesterday I had to go under anesthesia for a small procedure (also fertility related). Since then, man oh man. It's like it was earlier this year. Today has been pretty rough. I had weakness in my legs and right hand & arm all day. It's so unbearable at times. All I wanted to do was sleep so I could avoid the discomfort, but laying down is when it's worse. I'm laying down now and found a decent position to where it's not toooo bad, but even while typing I keep feeling teeny tiny twitches (fasciculations?) in my legs.
So...am I losing my mind? Do I need to be worried? I mean, I already am, but should I tell my brain to calm the eff down? I couldn't find side effects that resemble what I am experiencing from the hormone medications. My fertility specialist isn't sure about it either and doesn't seem to think it's related. I just don't know what to do or think. Any advice is greatly appreciated.
I just wanted a baby, and instead I got these terrible, scary symptoms. Ugh!
I am a 30 year old female. In April 2015, I started some fertility treatments. I did an ovulation trigger shot, and 24 hours later I noticed weakness in my hands, arms, and legs. I did my first trigger the month before and had no issues. After the 2nd one (April), the weakness started and progressed pretty uncomfortably and badly. I felt like I could barely cut into my eggs. Walking was possible, but it seemed like my legs were dragging. It's a weakness that I have a hard time explaining to people. Over the course of probably 3-4 months, it persisted and was accompanied by twitching, both visible and not. Mostly in my legs, and sometimes my pinky toe would randomly do a little twitch dance. The twitching pretty much only happened when I would lay down to go to sleep (which is when the weakness would be even more unbearable). The symptoms were later joined by some pain and tingly feelings in my legs. There was one day I had a weird pain on top of my foot that brought me down to the ground. Just as quick as it came, it was gone.
Anyway, I stopped all fertility treatments and sought a neurologist. He didn't seem to be concerned about ALS. He did an MRI and EMG. Both came out normal. My primary care dr also ran a slew of tests. Vitamin D was normal as well as everything else. I've been taking Vit. D3 anyway as one of my fertility supplements. Dr. also ruled out Lymes.
For the past 3 months or so, I've been feeling 90% better. It's rarely been an issue, so I figured whatever happened (maybe something from the injection) finally worked its way out of my system. I still got the weakness sometimes at night when laying down, but overall I felt like myself again and got ALS out of my mind.
Two months ago I took hormones to start my fertility treatments again. I haven't done the injection yet (that will be in a few days). I felt some weakness a few days after taking the pills (letrozole), but it went away fairly soon. I took them again last week, and with the exception of one bad night (tons of twitching in my legs and discomfort & weakness in legs), I was good.
Yesterday I had to go under anesthesia for a small procedure (also fertility related). Since then, man oh man. It's like it was earlier this year. Today has been pretty rough. I had weakness in my legs and right hand & arm all day. It's so unbearable at times. All I wanted to do was sleep so I could avoid the discomfort, but laying down is when it's worse. I'm laying down now and found a decent position to where it's not toooo bad, but even while typing I keep feeling teeny tiny twitches (fasciculations?) in my legs.
So...am I losing my mind? Do I need to be worried? I mean, I already am, but should I tell my brain to calm the eff down? I couldn't find side effects that resemble what I am experiencing from the hormone medications. My fertility specialist isn't sure about it either and doesn't seem to think it's related. I just don't know what to do or think. Any advice is greatly appreciated.
I just wanted a baby, and instead I got these terrible, scary symptoms. Ugh!