Bobby888
New member
- Joined
- Nov 3, 2017
- Messages
- 9
- Reason
- Loved one DX
- Country
- CA
- State
- Ontario
- City
- Oakville
I was wondering if someone knowledgeable would be able to help me with some concerns regarding my fathers condition. He has been tested for over a year now and we still don’t have a final diagnosis but doctor seems to be leaning towards ALS. My father was diagnosed with Ocular melanoma 13 years ago and his eye was removed. 2 1/2 years ago that cancer returned and was found in his liver. The doctors performed a liver resection which has been successful. Shortly after my fathers surgery he started to lose weight from 175 lbs to 150 lbs. His breathing started to become more difficult and he began to get weaker. Over the last year these symptoms have progressed and he is having trouble walking for long distances. He has lost more weight and is now 133 Lbs and having trouble speaking because his voice is very faint. 3 months ago my father over worked his body and hat night I noticed he started to talk with a slur. I was very concerned but the slur went away. The slurred speech is back now and his communication is getting worse by the week. At night his speech is much worse than when he wakes in the morning.
Today the doctors performed an EMG and said there were abnormalities that suggest ALS but also said there are things that point to MYasthenia Gravis. He sleeps with his eyes partly open and his one eye droops when he is tired.
So far my father has lost a lot of weight is getting weaker and has lost most of his muscles. He has recently started feeling twitching and muscle cramps. He has a really hard time with his breathing and uses a Cpap machine which gives him major headaches every morning when he wakes. He is having trouble swallowing and is now on a mostly liquid diet. The doctor today mentioned his tongue didn’t seem to be really effected.
I’m just wondering if this could be MG and not ALS or if this looks or sounds more like ALS would be the prognosis. He does have more symptoms when he is stressed or when he has tests coming up and I find his speech can be very weak and slurred one night and the next morning he seems a little better.
Sorry for rambling I haven’t got much sleep lately worrying and hoping to get some answers from someone since we have been waiting what feels like forever.
Regards
Today the doctors performed an EMG and said there were abnormalities that suggest ALS but also said there are things that point to MYasthenia Gravis. He sleeps with his eyes partly open and his one eye droops when he is tired.
So far my father has lost a lot of weight is getting weaker and has lost most of his muscles. He has recently started feeling twitching and muscle cramps. He has a really hard time with his breathing and uses a Cpap machine which gives him major headaches every morning when he wakes. He is having trouble swallowing and is now on a mostly liquid diet. The doctor today mentioned his tongue didn’t seem to be really effected.
I’m just wondering if this could be MG and not ALS or if this looks or sounds more like ALS would be the prognosis. He does have more symptoms when he is stressed or when he has tests coming up and I find his speech can be very weak and slurred one night and the next morning he seems a little better.
Sorry for rambling I haven’t got much sleep lately worrying and hoping to get some answers from someone since we have been waiting what feels like forever.
Regards