JMH
Active member
- Joined
- Jun 11, 2006
- Messages
- 42
- Reason
- Loved one DX
- Country
- CA
- State
- Manitoba
- City
- The Pas
Took dad to the ALS specialist on Tuesday. This doctor did an EMG and I think nerve tests as well as a thorough exam. of my dad. He confirmed the ALS diagnosed. Gave him a form to fill out for Rilutek and ordered blood work. He said dad could go for the MRI but didn't think it would alter his decision. Said he would put us in touch with the ALS society.
My dad's wish is to stay on the farm - I think he fears abandonment to a care home or hospital. I promised him he could live in his own home as long as possible. Now I just need to go about making that possible. I hope that it is. It was heartbreaking to see him go through the tests and have them confirm the diagnosed.
The disease seems to be progressing quickly and I am so scared - I know he needs changes made to his house i.e. bathroom reno. etc. but he is hesitating at suggestions that we start these things soon. My dad has a lot of pride and I think it hurts him to have to give in to this. I tried to talk to him about deciding what he wants to do about med. decisions, etc. He says he can't decide but I don't think he realizes how important it is to take care of certain things quickly. Any advice for me?
JMH
My dad's wish is to stay on the farm - I think he fears abandonment to a care home or hospital. I promised him he could live in his own home as long as possible. Now I just need to go about making that possible. I hope that it is. It was heartbreaking to see him go through the tests and have them confirm the diagnosed.
The disease seems to be progressing quickly and I am so scared - I know he needs changes made to his house i.e. bathroom reno. etc. but he is hesitating at suggestions that we start these things soon. My dad has a lot of pride and I think it hurts him to have to give in to this. I tried to talk to him about deciding what he wants to do about med. decisions, etc. He says he can't decide but I don't think he realizes how important it is to take care of certain things quickly. Any advice for me?
JMH