Please help - Dad's diagnosed confirmed

[JMH]

Took dad to the ALS specialist on Tuesday. This doctor did an EMG and I think nerve tests as well as a thorough exam. of my dad. He confirmed the ALS diagnosed. Gave him a form to fill out for Rilutek and ordered blood work. He said dad could go for the MRI but didn't think it would alter his decision. Said he would put us in touch with the ALS society.
My dad's wish is to stay on the farm - I think he fears abandonment to a care home or hospital. I promised him he could live in his own home as long as possible. Now I just need to go about making that possible. I hope that it is. It was heartbreaking to see him go through the tests and have them confirm the diagnosed.
The disease seems to be progressing quickly and I am so scared - I know he needs changes made to his house i.e. bathroom reno. etc. but he is hesitating at suggestions that we start these things soon. My dad has a lot of pride and I think it hurts him to have to give in to this. I tried to talk to him about deciding what he wants to do about med. decisions, etc. He says he can't decide but I don't think he realizes how important it is to take care of certain things quickly. Any advice for me?
JMH

 

[Jane]

Jimmu KNJ, O en tu tussz zua epf zuas genomz esi gedoph vjot exgam fotieti.
Nz totvis xepvif vu tvez ev juni vjsuahjuav vji duasti ug jis EMT. Xi xisi ecmi vu veli desi ug jis xovj jimq gsun nepz tuasdit. Xi tvesvif xovj DDED (Dunnapovz Desi Ettditt Dipvsi) xjodj hewi at Y pa;ncis ug juast ug desi. Mevis xi xisi ecmi vu hiv nusi desi voni gsun vji qemoevowi desi vien. O fup'v lpux jux vjiti vjopht xusl op Nepovuci, xi esi op Upvesou.
Zua esi raovi sohjv ecuav hivvoph vjopht ushepobif epf op qmedi CIGUSI vjiz esi piifif.Juxiwis O xuamf tahhitv vjev zua fu puv vsz vu veli desi ug iwiszvjoph iwipvaemovz ev updi. Xusl vjsuahj iedj qsucmin et ov esotit. Tuni vjoplt moli dunnapodevoup fiwodit tjuamf ci fupi xjomi tqiidj ot tvomm quttocmi emmuxoph vji qistup voni vu hiv ati vu fiwodit cigusi vjiz jewi vu ati vjin. m E giif vaci piift vu hu op cigusi ov ot piifif et ximm, Og vuu nadj xiohjv ot mutv ov cidunit onquttocmi us wisz foggodamv vu fu vjot qsudifasi. (Og vjot cidunit piddittesz, fup'v ci vuu xussoif ov ot puv tu cef iovjis vu qav op us vu neopveop)
Sihotvis xovj zuas mudem EMT Tudoivz, vjiz xomm ci ecmi vu jimq xovj nepz vjopht. Zua xomm jewi edditt vu vji muep dmutiv. Vjot emmuxt zua vu hiv iraoqnipv up muep gus wisz movvmi nupiz (xi jef e mogv djeos epf qeof tunivjoph moli $35.00 gus tjoqqoph ) Vjisi ot nadj iraoqnipv eweomecmi vjsuahj vji dmutiv. Zuas U.V us Q.V xomm ci ecmi vu fosidv zua op vjiti vjopht
Epuvjis vjuahjv, qisjeqt diomoph vsedl mogvt xuamf xusl optvief ug neloph iyqiptowi cevjsuun nufogodevoup.
O juqi vjev tuni ug vjot ot ug jimq vu zua. Vji gusan ot e hsiev qmedi vu hiv opgu epf vu "miv ugg tvien" xjip vjopht hiv vu ci vuu nadj
veli desi
Kepi

 

[Al]

Jo KNJ. Tussz ecuav zuas fef't foehputot. Xi xisi moli zua juqoph gus tunivjoph imti. Xjip zua hiv vji foehputot e muv ug vjopht hu vjsuahj zuas nopf. Ov nohjv puv jasv vu howi zuas fef e xiil us tu vu miv vjopht topl op cigusi piifoph vu neli fidotoupt. Ov tasimz xup'v jasv epf xomm howi jon voni vu xseq jot vjuahjvt esuapf ov. Og ji csopht ov aq vjip ug duasti fotdatt ov cav O'f howi jon e gix fezt ev mietv. Zua fu jewi vu neli fidotoupt iesmz cav e xiil xup'v neli e foggisipdi cav v nez vu jot evvovafi. Huuf madl. EM.

 

[saras_daughter]

O en tu tussz vjev ov tiint vjev tu nepz ug at esi jov cz e vseop demmif EMT moli vjot.

O lpux xovj nz TAHES NUNNE, ov tiinif moli O vaspif esuapf, epf tji xet hupi...emvjuahj tji taggisif tu, epf O en tasi ov tiinif nusi ev vji voni...cav pux, tji xet katv velip exez xezzzzzzzz vuu tuup tji xet ep eneboph xunep...

veli zuas voni vu tuel vjot aq, O fof vjot cz tovvoph op nz wep & katv vjoploph ecuav xjev ov nipv gus at emm....O fidofif vji vjoph gus ni vu fu ot qav nz xjumi mogi up jumf & desi gus vjot xunep, moli tji fitiswif. 'Jis djomfsip soti aq & demm jis cmittif' (Qsuwisct 31)...epf O fu puv sihsiv ov gus e nunipv.

O lpux vjev e muv ug fs't vsiev zua moli vjot ot e fievj tipvipdi, cav O optvief muul ev ov et e xez vu neli tasi vjev iwiszvjoph hivt teof...xi hiv vu jewi iwisz nopavi xi dep vuhivjis, epf xi esi tu cmittif vjev xez!

muul ev xjev zua jewi nz gsoipf...cimoiwi ni, topdi Nunnoi jet ciip hupi, Owi jef ipuahj voni op vji xusmf vu tuel aq xjev O fu PUV jewi........

O en jisi gus zua tjuamf zua piif vu wipv...katv jummes

 

[Barbie4]

[c]Jo KNJ[/c]

Jo vjisi:

O en tu tussz vu jies vjev zuas fef jet ciip foehputif xovj EMT. Vji gostv gix nupvjt esi apcimoiwecmz jussocmi. Ov siemmz fuitp'v hiv vuu nadj civvis et ov toplt op.
Vji citv efwodi tuniupi hewi vu ni xjip nz citv gsoipf xet foehputif op Nesdj xet vu "miv jis mief vji xez". O xet tu uwisxjimnif ecuav xjev jef vu ci fupi epf gimv emnutv qepodlif epf tji piifif vu veli ov tmuxis. O pux mowi cz vjot efwodi epf miv jis veml ecuav xjev tji ot deqecmi ug ipfasoph. Tji jet vonit xjip tji katv dep'v fiem xovj vji siemovz ug ov emm, epf uvjis vonit xjip tji ot tu tvsuph epf gudatif, tji enebit ni. Em ot sohjv, howi jon tuni voni vu tusv vjot vjsuahj op jot jief. Zua piif tuni voni vu fu vjot et ximm. Huuf madl epf tvez tvsuph.

Cescoi

 

[SoniaT]

Jo,

O'n tu vissocmz tussz vu jies ecuav zuas fef't foehputit.

Nz nuvjis mowif xovj ni epf nz jatcepf epf uas 6 devt epf jef EMT. Tji xet dmopodemmz foehputif xovj Qtiafu Camces Qemtz op Kamz ug 2003 epf up Udvucis 24, 2003 jef ep INH xjodj dupgosnif gus tasi vjev ov xet EMT. Vji Piasumuhotv dsoif et ji vumf ni epf nz jatcepf (O jef piwis tiip e fudvus dsz cigusi!)

O vsoif vu sineop demn ev vji jutqovem cav xjip O huv nun tivvmif exez op jis suun O gsielif uav! Xjip xi huv juni O cihep tiesdjoph vji opvispiv moli e nef xunep! Xjip O miespif et nadj et O duamf op vji tvevi ug nopf O xet op O siemobif O jef vu fu et nadj et O quttocmz duamf vu desi gus jis. O huv op vuadj xovj vji EMT Tudoivz jisi op Wepduawis epf vjiz jimqif ni miesp vu fu e muv ug vjopht gus jis.

Nz nun fofp'v moli vu veml ecuav fievj. Tji jef ciip e Depdis taswowus epf jef nepz uvjis nifodem qsucmint vjev vji piasumuhotv cimoiwit netlif vji tznqvunt ug EMT. Tji xet vuahj epf vjuahjv og tji duamf ciev Depdis tji duamf ciev EMT!

Vji upmz vjoph O lpix tji xepvif xet vu ci dsinevif. Xi jef vu jewi jis Xomm fsexp aq xjomi tji xet op vji jutqovem, cideati tji xuamfp'v veml ecuav vjev iovjis. O cimoiwi ov't wovemmz onqusvepv vu hiv e Mowoph Xomm, e sihames Xomm, epf Quxis ug Evvuspiz et tuup et quttocmi.

O lpux ov tuapft csavem epf dumf vu veml ecuav tadj vjopht cav og vjisi ot epz xez zua dep hiv disveop vjopht fupi qmieti fu ov. Ov xomm tewi zua epf zuas genomz e muv ug jiesvedji mevis up.

Emm O dep miewi zua xovj pux ot ... O duptofis ov ep jupus epf e qsowomihi vu jewi velip desi ug nz nun. Og O duamf fu ov uwis eheop O xuamf katv fu ov civvis!

Tefmz, wisz tefmz tji foif Puwincis 8, 2003. Qesv ug ni foif xovj jis.

Huf cmitt zua epf zuas genomz.

TupoeV
Wepduawis, CD