Andrewfung28
New member
- Joined
- Jul 16, 2022
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- Valley Stream
Hi, I’m a 50 year old male and I am very worried about some symptoms that I’m having. In August of last year I noticed that my voice was a little hoarse. I attributed it to a cold I felt I was having and didn’t think about it for awhile. About April of this year, realized that it was still there, so I made an appt with an ENT. He diagnosed me with laryngeal muscle muscle tension disorder and recommended that I see a speech therapist. The only appt I was able to get, however, is not until next week. My symptoms has since gotten worse though. It’s so bad that I don’t like to talk anymore.
I must backtrack a little though. At the time that I noticed that I was still hoarse in April, I googled my symptoms and ALS popped up as one of the possible cause. Like an idiot I dove into into reading up a lot more on it as well as watching YouTube videos. Not long after that, I started having twitches in my right leg. That’s has since spread to pretty much my entire body. I have also lost about 20 pounds since then. I have been to a Neurologist and done an EMG on my limbs. Thankfully, that was clean.
I read the guidelines for posting and if I’m violating, please accept my apologies. What’s scaring me is the worsening hoarseness and I also feel like my swallowing is off. I haven’t been to work in 3 months because of my constant worrying. I can’t sleep- which I forgot to mention- like I used to before. I will wake up multiple times through the night. I would fall asleep and be up 5 mins later. I’ve also been crying a lot, which is not normal for me. My tongue seems like it has gotten smaller. I haven’t seen any twitching of it when it’s resting in my mouth though. In my opinion, it has atrophied.
Sorry for such a long and rambling post, but I’m begging for some insight. Very scared this might be ALS. Specifically Bulbar or Respiratory onset because of the voice and sleeping issues. Thanks in advance for any response.
I must backtrack a little though. At the time that I noticed that I was still hoarse in April, I googled my symptoms and ALS popped up as one of the possible cause. Like an idiot I dove into into reading up a lot more on it as well as watching YouTube videos. Not long after that, I started having twitches in my right leg. That’s has since spread to pretty much my entire body. I have also lost about 20 pounds since then. I have been to a Neurologist and done an EMG on my limbs. Thankfully, that was clean.
I read the guidelines for posting and if I’m violating, please accept my apologies. What’s scaring me is the worsening hoarseness and I also feel like my swallowing is off. I haven’t been to work in 3 months because of my constant worrying. I can’t sleep- which I forgot to mention- like I used to before. I will wake up multiple times through the night. I would fall asleep and be up 5 mins later. I’ve also been crying a lot, which is not normal for me. My tongue seems like it has gotten smaller. I haven’t seen any twitching of it when it’s resting in my mouth though. In my opinion, it has atrophied.
Sorry for such a long and rambling post, but I’m begging for some insight. Very scared this might be ALS. Specifically Bulbar or Respiratory onset because of the voice and sleeping issues. Thanks in advance for any response.
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