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Just because you still have strength to push the doc's hands away you are fine?

Man, I just don't get it! My husband can still push with legs and hands. The doc says good for you! But he hasn't sent him home with a changed diagnosed of no ALS.
 
I can still push as well I can pull up But I canpush out of a chair with my arms Yet I can raise them Crazy right Pat
 
This confirms my suspicion that, by the time they can DX us, things will have progressed to the point where anybody passing us on the street can see that something is wrong. Not to hold it against the docs. There is no real test for MND, therefore they must rely on their observations. And nobody wants to hand out a death sentance based upon his or her observations unless and until it is fairly obvious to the average eye.

This is how I explain things to myself, at least. Cindy
 
So how can a freaking doctor rule it 110% out on me if they are not sure how do really diagnosed it...

Quacks....sorry yall.
 
Maybe it is easier to see that a patient does NOt have it than to see that he or she does?
 
Just my oppinion.

IMHO UNCLA was talking about Benign fasciculation syndrome, that presents with fasciculations, temporary weakness and so on. I think his post is really good because many peoply only visit this site to find out something about their twitching and the only thing the find is ALS...so it could help them, if they dont have any other symptoms

About twitching, I thought its impossible to have twitching BEFORE any weakness, since twitch is a result of muscle reinerrvation? Also all ALS specialist think so. Too twitching on the whole body isnt for ALS - here it usually starts in limb and spread to entire body. My neuro told me twitch without any other symptoms (weakness, reflexes, coordination, atrophy..) is bening. Im twitching for a few months and hope its BFS, but of course Im affraid of ALS and every day excersises - 100 press-ups, sit ups...Im hypochondriac so I check myself every second.

I wanted to say that the meaning of the post is good - Dont let new visitors (without DX) think they have ALS if they are ONLY twitching. Only 6,7% of ALS patiens has fascics as first sign, but docs find weakness at least in one limb that these people dont notice.

On many and many places we can read that twitching alone is benign, so why scare people who maybe have this only from anxiety? (I was DXd with panic "disease" and anxiety that they say cause my twitching and tremors - its worse when Im nervous and stressed).
 
This forum has really educated me on my twitching issues-- I have documented its progression from twitches- to cramps- to tremors to my percieved weakenss. Without the ability to have accounts from other individuals that have the same initial symptoms that I have-- I would be too easy to convince that it is just BFS/ I know it is more neuro-muscular than what they initially told me. I have followed much advice for preparedness-- got better life insurance and disability ins. and made arrangements to be ahead of the game- if my destiny is to be diagnosed with this terrible disease. Everyone has been so helpful and most of all positive. I thank you all ! ANd believe it or not-- even UCLA has brought about a few good points and really turned a small post and statement into a giant scroll. The bottom line is that no doctor really knows until we have progressed to the point to where it is absolutely conclusive. They do not want to get sued for an incorrect diagnosis-- that is why they keep making you come back every 3 months. Too many variations/ forms/ onsets and presenting symptoms. I think the specialists shoud really read these forums. This may help them with diagnosis.

G
 
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