Bluezoo22
New member
- Joined
- Apr 11, 2023
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hello,
I just wanted to post about my loved one who is 50. In September of last year he noticed some twitching in his bicep muscle and a feeling that something in his body didn’t feel right when walking. He has had several blood tests indicating high CK levels which reduced prior to Christmas. From October onwards one arm was affected in that he lost strength in this and this has now progressed to loss of movement in both arms and hands with the current situation being that he cannot hold a plate (his hands just drop down). He reports one arm weaker than the other however mobility in both reduced with him being unable to lift these above elbow level. This deterioration has happened since Christmas along with balance being affected and a number of falls. Physically, his shoulder muscle on one side is smaller than the other (both sides overall reduced in size) and I am noticing that he has lost weight/muscles in his arms. He is very fatigued and speaks at times slower than usual. Over the past two nights he has woken with pain in his shoulder which is a new symptom-previously although he did have restricted movement in his arms this did not cause a great deal of pain. He has lost the majority of movement in one finger which hangs down when his hands are straight.
We have been to see a muscular skeletal specialist who completed an MRI of the spine which was normal and the next step is seeing a neurologist. I have googled and read this site and can see that some symptoms are suggestive of ALS, however are also mentioned in other diagnoses. The worrying part for me is the fast progression of this and was just hoping for any experiences/views of others on whether this could be worth mentioning at the neurology appointment? I am also aware that other symptoms he has had such as sweating/fatigue could be due to the anxiety he is currently experiencing.
Thanks in advance for any replies- I am sure I have probably missed things out but can answer any questions.
I just wanted to post about my loved one who is 50. In September of last year he noticed some twitching in his bicep muscle and a feeling that something in his body didn’t feel right when walking. He has had several blood tests indicating high CK levels which reduced prior to Christmas. From October onwards one arm was affected in that he lost strength in this and this has now progressed to loss of movement in both arms and hands with the current situation being that he cannot hold a plate (his hands just drop down). He reports one arm weaker than the other however mobility in both reduced with him being unable to lift these above elbow level. This deterioration has happened since Christmas along with balance being affected and a number of falls. Physically, his shoulder muscle on one side is smaller than the other (both sides overall reduced in size) and I am noticing that he has lost weight/muscles in his arms. He is very fatigued and speaks at times slower than usual. Over the past two nights he has woken with pain in his shoulder which is a new symptom-previously although he did have restricted movement in his arms this did not cause a great deal of pain. He has lost the majority of movement in one finger which hangs down when his hands are straight.
We have been to see a muscular skeletal specialist who completed an MRI of the spine which was normal and the next step is seeing a neurologist. I have googled and read this site and can see that some symptoms are suggestive of ALS, however are also mentioned in other diagnoses. The worrying part for me is the fast progression of this and was just hoping for any experiences/views of others on whether this could be worth mentioning at the neurology appointment? I am also aware that other symptoms he has had such as sweating/fatigue could be due to the anxiety he is currently experiencing.
Thanks in advance for any replies- I am sure I have probably missed things out but can answer any questions.