fmarino
Active member
- Joined
- Mar 9, 2008
- Messages
- 42
- Reason
- PALS
- Country
- US
- State
- nj
- City
- new brunswick
Hello everyone
I have had these symptoms long enough and now I need to share them. I have my fears that I have something really bad.
I am a 40 year old male. This all started about 3 months ago. I had unexplained MILD weakness in my arm (shoulder, bicep, forearm). A month later I developed some weird sensation in that arm (kind of tight, burning . . . hard to explain) when I used it too much and it got weaker when it felt that way (that lasted a few days). That sensation more or less went away for about a month and then it came back again a month later, but this time it went all the way into my hand. This time my entire arm felt weaker (even hard to move my fingers). When the sensation went away (it again lasted a few days), I had better use of my arm and hands. My arm now aches but that comes and goes depending on how I'm sitting. The ache will move from muscle to muscle depending on how I'm sitting or standing. When the discomfort is there, my arm feels weaker. I have read threads on here about pain and ALS and most claim that pain isn't associated with ALS (especially very early in the disease), but others have said that it is. For those who have had pain, what kind of pain is it? Does it burn and feel like someone is squeezing your arm? Does your pain "go away" and then come back. One other thing: I've lost muscle in my arm: in my shoulder, my upper arm (mainly tricep) and forearm. My hand seems to be ok.
Well now 3 months later, my other arm is having similar, but much, much milder symptoms. It feels like it's getting weaker. When all of this started, that arm had a strange tingly feeling in my shoulder and then felt weaker shortly after that. That went away in a couple of days. Now the arm is getting a little weaker.
I also have a strange feeling in my leg (this started about month after my first symptom in my arm). I'm not sure if it's weakness or something else. It also travels: sometimes I feel it in my feet and calf and sometimes I feel it in my upper leg and sometimes I feel it in my gluteal muscle and sometimes I feel it in my entire leg. It travels around a lot and sometimes I feel it in both legs, but when I do, I feel it in my calves and feet. Some days it's completely gone, but most of the time it's present. Again, I'm not sure if it's weakness. It's a very weird feeling. What does weakness feel like in your legs?
I've read enough about ALS and I've been on here long enough to realize that my symptoms aren't typical. BUT, what concerns me is that this all started without pain AND I've read how some people have had pain with ALS.
I respectfully ask you all for some advice. Getting more nervous as the hours go on.
Frank
I have had these symptoms long enough and now I need to share them. I have my fears that I have something really bad.
I am a 40 year old male. This all started about 3 months ago. I had unexplained MILD weakness in my arm (shoulder, bicep, forearm). A month later I developed some weird sensation in that arm (kind of tight, burning . . . hard to explain) when I used it too much and it got weaker when it felt that way (that lasted a few days). That sensation more or less went away for about a month and then it came back again a month later, but this time it went all the way into my hand. This time my entire arm felt weaker (even hard to move my fingers). When the sensation went away (it again lasted a few days), I had better use of my arm and hands. My arm now aches but that comes and goes depending on how I'm sitting. The ache will move from muscle to muscle depending on how I'm sitting or standing. When the discomfort is there, my arm feels weaker. I have read threads on here about pain and ALS and most claim that pain isn't associated with ALS (especially very early in the disease), but others have said that it is. For those who have had pain, what kind of pain is it? Does it burn and feel like someone is squeezing your arm? Does your pain "go away" and then come back. One other thing: I've lost muscle in my arm: in my shoulder, my upper arm (mainly tricep) and forearm. My hand seems to be ok.
Well now 3 months later, my other arm is having similar, but much, much milder symptoms. It feels like it's getting weaker. When all of this started, that arm had a strange tingly feeling in my shoulder and then felt weaker shortly after that. That went away in a couple of days. Now the arm is getting a little weaker.
I also have a strange feeling in my leg (this started about month after my first symptom in my arm). I'm not sure if it's weakness or something else. It also travels: sometimes I feel it in my feet and calf and sometimes I feel it in my upper leg and sometimes I feel it in my gluteal muscle and sometimes I feel it in my entire leg. It travels around a lot and sometimes I feel it in both legs, but when I do, I feel it in my calves and feet. Some days it's completely gone, but most of the time it's present. Again, I'm not sure if it's weakness. It's a very weird feeling. What does weakness feel like in your legs?
I've read enough about ALS and I've been on here long enough to realize that my symptoms aren't typical. BUT, what concerns me is that this all started without pain AND I've read how some people have had pain with ALS.
I respectfully ask you all for some advice. Getting more nervous as the hours go on.
Frank