Pity Party - Please pull up a chair

ReginaS

Forum Supporter
Distinguished member
Joined
Nov 20, 2018
Messages
147
Reason
Lost a loved one
Diagnosis
02/2018
Country
US
State
LL
A further down the road phase in the pity party: this disease has just about close to taken my pALS. Soon the ramps will be useless. I will have them removed and can look at the holes in the carpets. Much smaller than the hole in my heart.

Quote: "When the hospice nurse tells you you can stop taking your laxative you know you are close to the end". He still has his sense of humor!
We sure had a lot of laughs despite ALS.
 

Thomas933

Active member
Joined
Dec 4, 2018
Messages
89
Reason
CALS
Diagnosis
12/2018
Country
Uni
State
RI
Regina - I know I’ll miss the ramps!!! So sorry, hang in there. I’m glad you are still laughing.
 

Jrzygrl

Senior member
Joined
Feb 14, 2017
Messages
545
Reason
CALS
Diagnosis
08/2014
Country
US
State
NJ
Ditto that, Thomas!

Hugs Regina.
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
11,774
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
home
Thomas I get it - I gave over one spare bedroom to just pile furniture to the ceiling in as it was removed from other rooms to make space for equipment 💜
 

vltsra

Distinguished member
Joined
Nov 12, 2015
Messages
338
Reason
CALS
Diagnosis
11/2015
Country
US
State
CA
Yeah ditto Thomas933. My dream was to travel and my PALS promised me that when he retired he would travel with me. He had to shut down his business and retire when he was diagnosed. He is now in a walker and reluctant to leave the house. Instead of traveling together I'm going to use the money we saved to have an elevator installed in the house. Ugly metal ramps as well. Dr. tells me to learn to live with ALS as my PALS has a slow progression. Meanwhile I watch his body betray him, but slowly so it is somehow even worse. It sucks.

V
 

Thomas933

Active member
Joined
Dec 4, 2018
Messages
89
Reason
CALS
Diagnosis
12/2018
Country
Uni
State
RI
Yes it does. It. Sucks. I’m so sorry for everyone’s sadness.
 
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