turnip
Member
- Joined
- Jan 24, 2016
- Messages
- 17
- Reason
- CALS
- Diagnosis
- 01/2015
- Country
- US
- State
- OH
- City
- OLMSTED FALLS
Has anyone else seen basic personality changes in their mate? My soul mate of 34 years, who now has ALS, was the guy who tells me dinner is good every day. If I do something for him he always goes out of his way to thank me. He never makes anyone feel like they are bothering him if they need help. He would go without something before putting someone out to get it.
The last week...I have seen a stranger. I know he is dealing with a ton of emotions, he is sick, afraid for my future, fear, loss of movement, a job and more. I get this. It is his journey and I can only imagine what is going on in his mind. I expect bouts of depression, faked "euphoria" and more.
But, he is now acting like many stroke patients I have cared for. A total personality switch. Quick example, he said he wanted to watch the first "Star Trek" movie. I spent an hour going through boxes, closets and the attic and couldn't find a copy. So I went online and searched all my usual sources, I found a copy to rent and set it up on his computer. After watching it for 4 mins. he threw his mouse and screamed that this wasn't the first movie! I never saw his eyes look like that before, so angry, disgusted with me. I finally found out he wanted that movie with Princess Leia, sigh, not the Star Trek he asked for. The old him would have thanked me for trying and we would have talked about what movie he was looking for.
When I try to keep his paperwork in order for his VA claim, and explain to him he has to sign this and give this to a doctor to fill out he yells, "Put it in my folder!!!" He won't listen to all he has to do. He *****es if I don't get food fast enough, if the dog barks or if I can't hook his diaphragm pace maker wires up fast enough. Not at all like the man I lived with for 34 years.
Can ALS alter brain, change personality like a stroke? Or is this just him ratcheting through moods, grief? I keep smiling and doing and saying yes dear, sorry dear, but it hurts.
The last week...I have seen a stranger. I know he is dealing with a ton of emotions, he is sick, afraid for my future, fear, loss of movement, a job and more. I get this. It is his journey and I can only imagine what is going on in his mind. I expect bouts of depression, faked "euphoria" and more.
But, he is now acting like many stroke patients I have cared for. A total personality switch. Quick example, he said he wanted to watch the first "Star Trek" movie. I spent an hour going through boxes, closets and the attic and couldn't find a copy. So I went online and searched all my usual sources, I found a copy to rent and set it up on his computer. After watching it for 4 mins. he threw his mouse and screamed that this wasn't the first movie! I never saw his eyes look like that before, so angry, disgusted with me. I finally found out he wanted that movie with Princess Leia, sigh, not the Star Trek he asked for. The old him would have thanked me for trying and we would have talked about what movie he was looking for.
When I try to keep his paperwork in order for his VA claim, and explain to him he has to sign this and give this to a doctor to fill out he yells, "Put it in my folder!!!" He won't listen to all he has to do. He *****es if I don't get food fast enough, if the dog barks or if I can't hook his diaphragm pace maker wires up fast enough. Not at all like the man I lived with for 34 years.
Can ALS alter brain, change personality like a stroke? Or is this just him ratcheting through moods, grief? I keep smiling and doing and saying yes dear, sorry dear, but it hurts.