Hi guys,
I've been prowling the web for people with a positive rheumatoid factor, muscle weakness and no diagnosis --- I found at least five people with that combination here.
If any of you have since managed to get a diagnosis, could you please post what that was, as my doctors are at a loss.
My labs:
RF positive (titre varies between 50-70)
CK mild elevation (<2 times the reference range)
LDH slightly above reference range on one occasion. Now WNL.
Symptoms: left leg muscle weakness (not clinical), fasciculations, mild myoclonic jerks, dizziness, fatigue.
Brain and spine MRIs (the whole length of it) normal. ESR, CRP, ANCA, WCC, and every other blood test normal.
Seen neurologist and rheumatologist -- nobody has a clue, and no clear ideas how to evaluate this further! I feel pretty terrible day to day and find the waiting game difficult but am trying to get on with things.
I'm certain that this isn't ALS (I suspect that it's autoimmune), but I feel like there's definitely a neuromuscular component to it given the labs and symptoms.
Thanks in advance.
I've been prowling the web for people with a positive rheumatoid factor, muscle weakness and no diagnosis --- I found at least five people with that combination here.
If any of you have since managed to get a diagnosis, could you please post what that was, as my doctors are at a loss.
My labs:
RF positive (titre varies between 50-70)
CK mild elevation (<2 times the reference range)
LDH slightly above reference range on one occasion. Now WNL.
Symptoms: left leg muscle weakness (not clinical), fasciculations, mild myoclonic jerks, dizziness, fatigue.
Brain and spine MRIs (the whole length of it) normal. ESR, CRP, ANCA, WCC, and every other blood test normal.
Seen neurologist and rheumatologist -- nobody has a clue, and no clear ideas how to evaluate this further! I feel pretty terrible day to day and find the waiting game difficult but am trying to get on with things.
I'm certain that this isn't ALS (I suspect that it's autoimmune), but I feel like there's definitely a neuromuscular component to it given the labs and symptoms.
Thanks in advance.