Tomswife
Senior member
- Joined
- Aug 22, 2022
- Messages
- 689
- Reason
- Lost a loved one
- Diagnosis
- 08/2022
- Country
- US
- State
- NJ
- City
- Livingston
Tom is scheduled for his PEG tube November 23. Because he has bulbar weakness he cannot recline more than 60 degrees. Therefore the typical way the tube is placed "outside in " will not be used.
His procedure will be done at the Center for Digestive Disease. He will be placed under general anesthesia, twilight. The tube will be placed through his esophagus and then pulled through the stomach wall. What I am calling "inside out". I have googled and cannot find a description of this procedure, mostly I think because it is not typically done this way.
We learned at clinic that Tom does not have respiratory weakness. His breathing is in the normal range. He has bulbar weakness. And it seems his neck organs/muscles collapse when he reclines (thanks gravity) and that is why he cannot breathe.
It would be helpful to me if anyone is familiar with this procedure. I am told it is called Peg via GI. And, I can just trust the doctors and see Tom in the recovery room.
His procedure will be done at the Center for Digestive Disease. He will be placed under general anesthesia, twilight. The tube will be placed through his esophagus and then pulled through the stomach wall. What I am calling "inside out". I have googled and cannot find a description of this procedure, mostly I think because it is not typically done this way.
We learned at clinic that Tom does not have respiratory weakness. His breathing is in the normal range. He has bulbar weakness. And it seems his neck organs/muscles collapse when he reclines (thanks gravity) and that is why he cannot breathe.
It would be helpful to me if anyone is familiar with this procedure. I am told it is called Peg via GI. And, I can just trust the doctors and see Tom in the recovery room.