PEG scheduled

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Dana, it is good to "have connections" and to be "ADAPTable"! lmao He is having some discomfort but nothing too horrible. Slight oozing. Off to do wound care and the evening flush of the long tube!
 
Kay, I am glad that you're on the job and that Web is doing ok. The peg tube is very easy once you get used to it. You mean that they gave you a peg tube without a Y adapter end? That is like selling you a car without any wheels, useless at least.

I had some bleeding for a few days but it quit so I'm sure it will for him too and after a couple of weeks he will almost forget that it is there.
 
You are such a ROCK STAR :cool::-D

I had no idea that place pegs no as an outpatient procedure:shock:! AND, it sounds like the center was staffed with an entire squad of big fat goofballs :shock::eek:! Thank God you are a "trained professional". All I would have been able to do was kick up a fuss and demand someone HELP! I'm there with you about the grossed out by slimy stuff!:mad::-x

I am glad that Web is up and about today...stupid, non-clinical question...did you actually pour the irish cream coffee INTO his tube?! :confused:

Love,
Melody
 
Mel, your the best! No, he drank his brewed Irish Cream coffee that was 1/2 heavy cream and fortified with REAL SUGAR [love those fat calories!] Sooo...while he was slurping it down his mouth it was COMING OUT the peg and draining into the collection bag! I suggested that we just connect the drainage back up to his mouth and have a continuous loop of recycled Irish Cream. :] I have a twisted and sick sense of humor. I think that all PEG's are done as Out Patient procedures for everyone-anyone else? It is just one more way for the Insurance Companies and Health[I don't]Care to maximize on their MONEY! Trust me, I spoke with the Head of the Department and the Hospital Administrator the next day with a detailed Constructive Critique. Honestly, I don't know if this is what normally happens or if it was just our special experience! IF it always is like this, they need to change asap and I gave them many suggestions from the viewpoint of the PALS, the CALS and from a Nursing observation. We do not want this to be the reality for one more person! Apparently they did not give him a very big dose of the Versed & Demerol-he was AWAKE and definately felt the procedure as uncomfortable. He is also VERY CLAUSTROPHOBIC and they strapped down his arms and legs. I told them that he could not be FLAT as he can not handle his secretions and will choke and they put him flat. The Nursing staff did not check his PEG or the connection to the drainage bag for the 45 min that I was gone. The Nursing staff did not offer any alternative to assisting me with finding him clean and dry clothing for the 1 hour ride home when it was 18 below zero. Maybe they could have gotten him some scrub pants? The Nursing staff did not do any return demonstration of wound care, how to manage the peg with flushing, checking for patency, s/s of problems and how to address potential problems at home, no one said anything about bleeding, they did not give me ANY supplies [I had to ask for a 60 ccc syringe so I could flush him at home] the post op discharge instructions were generic and not specific to a PEG. No tape, no sterile 4x4's, no connector that worked and I had to request pain medication on top of all of that. If I do not hear from them by next week with how they are fixing their flawed program, I will call again and not be so nice. :] The good news is that Web is walking a little straighter, the wound looks good, PEG works and I taught Web how to do wound care and how to flush and he did it on his own last night for the first time. :] I asked Matthew if he was ready to learn and I got a adament NO! I had to lol. This is the child that has always said that he is going to be a Neuro Surgeon and wants to go to Duke. I said, "Matthew, it is no biggy. If you can not do this-how are you going to be a Dr?" His pithy reply, "Momma, that is what Nurses are for!" ROTFLMAO He will learn to do it eventually-just not today. :]
Barry, it is a real Peg and has one part for the fluids and one little port for the balloon. I think that the confusing issue was the 24 hours of straight drainage to the foley bag. They didn't have an adaptor to connect the PEG to the drainage collection bag that fit and just tried to tape it together and it didn't work. SOOO did anyone else have 24 hours of being connected to a drainage bag? Was anyone else awake, aware and uncomfortable during the procedure? my inquiring mind wants to know :]
 
Hi Kay Marie, To answer your question, no, Jim was definitely not awake and uncomfortable during the procedure! And, he did not have a drainage bag either. I have never heard of that. Glad to hear Web is doing well. It has been a week since Jim's procedure and he is now up to 6 cans/day (plan goal) and the muscle trauma is getting better every day.
 
Was it outpatient, did he have IV antibiotic pre-op, were you given real care instructions and supplies for home care? Thanks for answering and I sent you a friend request :] Happy to hear that your Jim is improving! I am certain that it is due to all of your TLC!
 
Kay, when I had my peg put in last February i was in the hospital for four days so it was most definitely not an outpatient thing for me. I went in on a Wednesday night for a Thursday operation, when they did the operation apparently I had some breathing problems with the sedative (I dont remember anything after they strapped me down) so I was rescheduled for the next day. The Friday operation was with a full anesthesiology team and it went well (again I was completely out and don't remember a thing about it) and then they wanted to keep me overnight to make sure that there were no complications. As it was now the weekend there were no dietitians around to show us how to use the tube so the nurses were our teachers. We started out the feedings using a gravity bag and then very quickly went to using the syringe alone.

I was given a bag when we left the hospital which had a couple of syringes, gravity feeding bags, gauze, tape, Q-tips and a case of formula.

There was no drainage bag for me, maybe they just wanted to make sure that the tube was working? Or maybe it is something to do with him getting a tube with the water balloon right away? That is unusual from what I've heard on here.

Glad that he is doing well after all that, it does sound like a bit of a screw up.

Barry
 
hmmm...another question, this is day number 3 postop. Last night I saw just a little bit [about 1/2"] of fading bruising around the PEG site. This morning he has an area of greenish yellow bruising that extends about 4 inches in diameter. Anyone else have that?
 
Sounds like the doctor was overly rough. I did not have any of those problems at all. It was very easy for me and there was zero recovery needed. I was awake for most of the procedure and it only took 5 minutes, I got up and went home. No pain and simple.

Sorry for what you have been through! It does not seem right.
 
Wow, Kay Marie ... just catching up to this thread. I'm so sorry Web had such a horrendous experience! One of our forum members (Sharonca) was awake during her procedure, too ... a horrible experience.

Haven't heard of a drainage bag before. I didn't have the bruising, and haven't heard others mention it, but it sounds, as Joel says, as if they were pretty rough.

About the nurses: Those are about like the one I had after the PEG. She asked "Who'll be doing the caregiving," and when I pointed to myself, she said, "Well, then, if you don't have a caregiver, I guess there's no one to train!" and walked off. Fortunately, another nurse showed me a few basics before I left, and I figured the rest out by trial and error.

Thoughts and prayers for speedy recovery to Web and Jim and all others having the procedure done. It can go easy, but sometimes it doesn't, so we need to remember not to "over sell" the procedure as a snap for everyone. With every invasive surgery, there are risks.

Hang in there ... and Merry Christmas!
 
wahhhhh I am going to see if he will allow me to photograph it so you cansee the bruising...
 
First of all, how do I start a new thread. I don't have the button. Next. I had a peg put in on Thursday at Mayo in Jacksonville. I did not want to do it locally as I am not sure they deal with ALS patients here in Ft. Pierce very often and I was leery of the breathing problems I could have. They told me they would not put me out because of the breathing problems and that a respiratory specialist would be in the room with me. We in fact had to wait quite awhile while he was finishing up in the next room. Everyone was very supportive and helpful. Had an appointment first on how to take care of it and how to do the feeding then saw my Dr. who made sure everything else was ok. I was afraid of them not putting me out as I did not want to be awake, but i am brave and went ahead with it anyway. When I was in the operating room they gave me something that made me a bit woozy and when everyone got into the room the Dr. put the nasal tube in. I was really worried about this as I gag real easy and didn't want to bring on a laryngospasm, but it was not bad. i remember feeling it in my throat and the Dr. giving me a shot in the stomach, not too bad. Then I heard someone say, i think we can give her something I don't remember what because she is tolerating something very well. Next thing I new they were wheeling me back to recovery. I stayed there for an hour or so and they let me go home. I had a three hour drive home but the anesthetic was still in affect so it wasn't too bad. Had a bad night and today was real sore. I thought I would be going back to work today but that was not to happen. Now it is not too bad. Some soreness as expected but I hope to be back on the golf course by my birhtday, Jan 1.
It is weird having a tube coming out of my stomach and I am hoping I will be able to hide it under my clothing. I have it taped down right now, but everything else seems to be ok. I have given myself water a couple times today for hydration and I guess i will learn to live with it. So all in all, it has not been bad. They want me to try and maintain the weight I am now and will adjust feeding schedule if I start to lose weight. i will only be using it once a day for feeding with my dinner for now.
Anyway, just wanted to share my experience.
I am so sorry that others have had a bad time with it. I am hoping to recover rather quickly.
NancyS
 
Nancy, you are one tough cookie and I am soooo impressed! How are you doing now? I have taught Web how to flush and do wound care and he is doing fabulous with it all. The bruising ended up being about a 3 1/2 inch diameter but is almost gone now. He rotates it twice a day and the wound is healing nicely. He refuses to use it for anything but the flushes for now which is ok with me. He says when he gets tired of choking he will let me know! Ok FINE. He gets to call the shots. :] I must say that it was more difficult for him than I had anticipated and I am really glad that we had it done sooner rather than later.
 
Good heavens! I can't believe your husband's peg tube was an outpatient procedure! My husband was in the hospital for 4 days. He did have a drainage bag for a couple of hours. The nurse told us that the purpose was to drain the blood from the stomach after the procedure. My husband was also awake for the procedure because his breathing was a concern. They were afraid that he would stop breathing under anesthesia. We left the hospital with about 2 weeks worth of supplies and had 3 follow-up visits from a nurse once we were home. I am so glad that your husband is recovering nicely despite his limited hospital care!
 
Stephie, wish I could move to Minnesota! South Dakota...don't even get me started! How are you and your husband doing and welcome to the forum!
 
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