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indigosd
Very helpful member
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- Jun 22, 2009
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- 07/2009
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It is DONE! Web is now an Official member of the long tube club! It was a negative 18 when we left the house but no snow, NO WIND and the roads were dry. 
We did give him his Paxil at 0700 with just enough water to get it down. We met with the Dietician, Social Worker and the RN from their Home Health. The dietician did not understand that we were doing this proactively so that was a little confusing -she thought we would be doing continuous feeding immediately The Social Worker was somewhat helpful-told me of 2 State programs that we may qualify to get medical care for Matthew. I have no idea why the RN was there-she didn't teach us anything nor will they be able to come and help at the house because we are in another County. :twisted: Oh well.. The Social Worker did tell me of a GREAT program for the people that live in their County [doesn't help me] but thought that I would pass it on to the rest of you in case your County has something similar. SOME COUNTIES WILL PAY FOR YOUR COBRA! It is cheaper for them to do that than for uninsured people to use the ER for their Dr. office. Check with your County if you can get Cobra through your job and see if that is available!
The procedure took less than 10 minutes. All he had to remove was his shirt. He was given Demerol and Versed IV and also given a IV Antibiotic prior to the procedure as a precaution. He was scoped through his mouth. He spent about 2 1/2 hours in Recovery. I got a rx for Tylenol with Codiene elixir. He is attached to a Foley Cath drainage bag for the first 24 hours. Did anyone else have this done? No one said anything about that! I left the Hospital to go and pick up the pain medicine. I was gone about 45 minutes. I came back and his connection to the foley bag had come undone and his jeans were SATURATED with stomach contents-his entire front and all the way around the back! hmmmm...no change of clothing and does that mean that no one had checked him while I was gone..? And we have an hour drive to get home. I cleaned him up as best as I could and put dry hospital towels between his skin and the soaked underwear and jeans. Bigger issue is that the connection between the cath bag and the Peg doesn't work! They had just jammed the end of the foley bag into the little Peg opening and then tried to secure it with tape. :shock: So I ask for a connection adaptor and they have no clue what I mean! Their suggestion was that I see if there is such a creature at my local hospital. Web is soo ready to go home and we need to get back to get Matthew from school so I just plug his Peg and off we go. When we get home I get all of his soaked clothing off, quick bed bath to remove the goo, give him pain med and try to attach the cath bag and it just is NOT going to work! [I can now so appreciate all the comments about the PEG leaking! lol] hmmm...sure seems like that is blood that I see under the compression dressing that they said may have a "little" drainage and that i would not need to remove for 24 hours...I peel off the edges to peek and :shock: all four 4x4's are saturated with BRIGHT RED BLOOD. WTH! No one said anything about BLOOD! I removed the dressing-cleaned it, reapplied a new pressure dressing. Called my local hospital and spoke with my nurse friend to see if they had the adaptor that I needed. She didn't know but I could come and look! Kiss the guys goodbye, load up the fur friend Chip the dog and off we go. YEAH! I found the connector and also got some nice abd pads. Got home and it worked! Pushed 5 cc h20 through the Peg and listened with my Stethascope to make sure it was where it was suppose to be-all good to go so I connected him. Checked him before we went to bed-just a small amount of bleeding and no drainage in the foley bag?! Have no clue what that means so will check with the surgeon in the am. He is uncomfortable but not unbearable with the pain med. Walks hunched over because it hurts-anyone else do this? Surgeon said that he will replace this with a Mic-Key in 6 weeks if that is what we want to do. Love, Kay Marie
We did give him his Paxil at 0700 with just enough water to get it down. We met with the Dietician, Social Worker and the RN from their Home Health. The dietician did not understand that we were doing this proactively so that was a little confusing -she thought we would be doing continuous feeding immediately
The Social Worker was somewhat helpful-told me of 2 State programs that we may qualify to get medical care for Matthew. I have no idea why the RN was there-she didn't teach us anything nor will they be able to come and help at the house because we are in another County. :twisted: Oh well.. The Social Worker did tell me of a GREAT program for the people that live in their County [doesn't help me] but thought that I would pass it on to the rest of you in case your County has something similar. SOME COUNTIES WILL PAY FOR YOUR COBRA! It is cheaper for them to do that than for uninsured people to use the ER for their Dr. office. Check with your County if you can get Cobra through your job and see if that is available!The procedure took less than 10 minutes. All he had to remove was his shirt. He was given Demerol and Versed IV and also given a IV Antibiotic prior to the procedure as a precaution. He was scoped through his mouth. He spent about 2 1/2 hours in Recovery. I got a rx for Tylenol with Codiene elixir. He is attached to a Foley Cath drainage bag for the first 24 hours. Did anyone else have this done? No one said anything about that! I left the Hospital to go and pick up the pain medicine. I was gone about 45 minutes. I came back and his connection to the foley bag had come undone and his jeans were SATURATED with stomach contents-his entire front and all the way around the back! hmmmm...no change of clothing and does that mean that no one had checked him while I was gone..? And we have an hour drive to get home. I cleaned him up as best as I could and put dry hospital towels between his skin and the soaked underwear and jeans. Bigger issue is that the connection between the cath bag and the Peg doesn't work! They had just jammed the end of the foley bag into the little Peg opening and then tried to secure it with tape. :shock: So I ask for a connection adaptor and they have no clue what I mean! Their suggestion was that I see if there is such a creature at my local hospital. Web is soo ready to go home and we need to get back to get Matthew from school so I just plug his Peg and off we go. When we get home I get all of his soaked clothing off, quick bed bath to remove the goo, give him pain med and try to attach the cath bag and it just is NOT going to work! [I can now so appreciate all the comments about the PEG leaking! lol] hmmm...sure seems like that is blood that I see under the compression dressing that they said may have a "little" drainage and that i would not need to remove for 24 hours...I peel off the edges to peek and :shock: all four 4x4's are saturated with BRIGHT RED BLOOD. WTH! No one said anything about BLOOD! I removed the dressing-cleaned it, reapplied a new pressure dressing. Called my local hospital and spoke with my nurse friend to see if they had the adaptor that I needed. She didn't know but I could come and look! Kiss the guys goodbye, load up the fur friend Chip the dog and off we go. YEAH! I found the connector and also got some nice abd pads.
Got home and it worked! Pushed 5 cc h20 through the Peg and listened with my Stethascope to make sure it was where it was suppose to be-all good to go so I connected him. Checked him before we went to bed-just a small amount of bleeding and no drainage in the foley bag?! Have no clue what that means so will check with the surgeon in the am. He is uncomfortable but not unbearable with the pain med. Walks hunched over because it hurts-anyone else do this? Surgeon said that he will replace this with a Mic-Key in 6 weeks if that is what we want to do. Love, Kay Marie
thelma313
Senior member
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- Aug 25, 2008
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Whoa! I am giving you a standing ovation. Well done, Kay Marie. I got totally weak in the knees when my dad got his PEG and there was no leaking. Just reading about the bl**d (I can't even say it) gives me the willies. You are a superstar!
And I am so happy that the worst is over and Web has his PEG. Please give him my best and wish him a super speedy recovery.
And I am so happy that the worst is over and Web has his PEG. Please give him my best and wish him a super speedy recovery.
SavoringLife
Active member
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- Aug 5, 2008
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- Learn about ALS
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Kay -- you are amazing! I feel silly even complaining about Jim's recovery issues after reading what you & Web went through! Hope he is continuing to recover well, and yes, Jim walked hunched over for 4 days. Just now able to walk more upright and it's been almost 1 week since surgery. When are you starting your first Peg feeding? What is the recommended treatment plan? Since Jim is using the PEG for 100% of his nutrition, our treatment plan is 6 cans/day of Isosource 1.5. Right now, though, he can only manage 3 cans + 3 cups of water. Otherwise, he gets that overly-full feeling that we are supposed to avoid.
Keep us posted on Web's progress -- he is lucky to have such a capable caregiver!
Keep us posted on Web's progress -- he is lucky to have such a capable caregiver!
indigosd
Very helpful member
- Joined
- Jun 22, 2009
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- 07/2009
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aww, you girls-it was nothing. Bl**d doesn't bother me one bit but :shock:MUCOUS will make me retch and gag something awful! Please never ever show me slimey [gagging] snot! lolol I am HAPPY to report that he is up, the PEG is draining well and no more b#*%d on his dressing! We got a good laugh watching his Irish Cream coffee go down one tube just to come out the other! In an hour I will disconnect him from the bag and stick him in the shower and then feed him. Life is looking up!
joelc
Moderator emeritus
- Joined
- Jul 15, 2006
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- 09/2005
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- Abbotsford
WOW, not sure what advice I can give. I am amazed that you were not provided with better information and supplies before going home. I have never heard of a Foley bag being needed. I almost feel guilty with how easy mine was.
I hope you can put this experience behind you very quickly.
I hope you can put this experience behind you very quickly.
DgtofTNfan
Senior member
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- Feb 14, 2009
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What an ordeal. Who would send someone home with a brand new PEG and no adaptor and then recommend you to swing by somewhere else to see it they have it. Odd. LOL at your reference to "such a creature." Great thing you are a problem solver and have good connections (pun intended). Sheesh.
Hope Web heals quickly.
Dana
Hope Web heals quickly.
Dana
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