LizF
Active member
- Joined
- Jun 16, 2016
- Messages
- 64
- Reason
- PALS
- Diagnosis
- 06/2016
- Country
- CA
- State
- BC
- City
- Victoria
After quarterly spirography testing, my FVC has been 96% + since diagnosis in June 2016. However, my most recent test (last week) shows I have dropped to 71%.
My respirologist is concerned, as that's one big drop, and has booked me for another test in December instead of waiting quarterly. He said I should be thinking about having a PEG, which I am certainly open to.
I looked back over all the other threads I could find but couldn't find what my particular question is, so please forgive me if it's already been discussed. My question is, is there any drawback to having it installed early?
I have limb onset and zero issues with swallowing, breathing, saliva etc; I know that just because I'd have it, doesn't mean I would need to use it.
I suppose my concern is if surgery will hasten progression.
Input welcomed,
Thx Liz
xo
My respirologist is concerned, as that's one big drop, and has booked me for another test in December instead of waiting quarterly. He said I should be thinking about having a PEG, which I am certainly open to.
I looked back over all the other threads I could find but couldn't find what my particular question is, so please forgive me if it's already been discussed. My question is, is there any drawback to having it installed early?
I have limb onset and zero issues with swallowing, breathing, saliva etc; I know that just because I'd have it, doesn't mean I would need to use it.
I suppose my concern is if surgery will hasten progression.
Input welcomed,
Thx Liz
xo