Narrowminded
Extremely helpful member
- Joined
- Apr 30, 2016
- Messages
- 2,827
- Reason
- Lost a loved one
- Diagnosis
- 07/2007
- Country
- US
- State
- PA
- City
- Pittsburgh
I have to admit, we worked through our neuro - Brian had both the trach and PEG done at the same time. We came into the hospital with his bipap and met with the surgeon in the hospital the night before the procedure. He was excellent and went over everything. In our area, hospitals will not allow home bipaps/vents usage while in there, but will provide their own equipment. It could be that it's not that the can't have breathing help while there, just that he cannot have his "home" machine, but not stated well in any event.
When Brian's initial peg/button broke this spring, it was replaced with a what I would call regular tube done under IR. We went through a huge fiasco, because GI didn't want to touch what was done by surgery. Our surgeon at the time was no longer with the hospital. It had been 7 years. After a huge fight between services and my threatening to call patient services, we finally got someone to get it done. Under IR took very little time, other than the button that had been used, had to be clipped and brought out through Endo, as it was a hard backer and not a balloon that could be removed externally. What we have now has a balloon and could changed here at home if need be.
Good luck to you Buckhorn.
Hugs,
Sue
When Brian's initial peg/button broke this spring, it was replaced with a what I would call regular tube done under IR. We went through a huge fiasco, because GI didn't want to touch what was done by surgery. Our surgeon at the time was no longer with the hospital. It had been 7 years. After a huge fight between services and my threatening to call patient services, we finally got someone to get it done. Under IR took very little time, other than the button that had been used, had to be clipped and brought out through Endo, as it was a hard backer and not a balloon that could be removed externally. What we have now has a balloon and could changed here at home if need be.
Good luck to you Buckhorn.
Hugs,
Sue