Poet Chistopher Robin
Distinguished member
- Joined
- Mar 17, 2012
- Messages
- 147
- Reason
- PALS
- Diagnosis
- 06/2011
- Country
- UK
- State
- Tyne and Wear
- City
- Newcastle upon Tyne
The peg feed op went ahead no problem took all of just five minutes, no sore throat, although a week later and it’s still weeping as still also very sore too, Currently I take only my meds and energy boosts down it, but with just my left hand it is impossible for me to do alone
The ALS stepped up yet another notch to while I was in the hospital too preventing me from raising my left hand that high, as also preventing me from pushing myself up to sit up of the mattress this morning
But there were other problems created by junior doctors and nurses alike despite my demanding to see the registrar to make full complaint as far as I am aware this request was never even passed on once
The next day I could not go to the toilet at all so I was gave a catheter as a temporary measure, they say this often happens after an operation, they have tried to remove it once already but to no avail as I still had not been 10 hours later so another was fitted, and it is a week solid since I went for an actual pooh.
I am very tired eating soups custard smoothies, while awaiting some pureed meals to be delivered, to be taken orally which are much the same as hospitals supply
My mouth is major dry, more so in bed, but I do take the biotene gel and spray I cannot sit in one position for very long a time, otherwise find it difficult to swallow my own spit. I am also very unstable on my feet and finding it hard to push myself out of bed in a morning. Hopefully this will change somewhat when the pureed meals arrive.
I am very thin and have lost a lot of weight, my other half is back at work tomorrow, and thanks to the ignorance of a social worker I’ll have carers in for just three hours out of a ten hour day and will have to open the door for each one
I do not care what any person says about my complaints; I am dying terminally ill and not sitting there to be abused by doctors and nurses alike. I dread to think of the ill treatment I will receive when I cannot talk walk or move or indeed speak up for myself at all, and so many folk wonder why I wish and often pray I was dead sooner
It is about time that terminally ill dying folk were heard and treat with the due respect they are due and not pushed aside and used as a scapegoat for erring staff doctors and nurses as also local Doctors alike
The ALS stepped up yet another notch to while I was in the hospital too preventing me from raising my left hand that high, as also preventing me from pushing myself up to sit up of the mattress this morning
But there were other problems created by junior doctors and nurses alike despite my demanding to see the registrar to make full complaint as far as I am aware this request was never even passed on once
The next day I could not go to the toilet at all so I was gave a catheter as a temporary measure, they say this often happens after an operation, they have tried to remove it once already but to no avail as I still had not been 10 hours later so another was fitted, and it is a week solid since I went for an actual pooh.
I am very tired eating soups custard smoothies, while awaiting some pureed meals to be delivered, to be taken orally which are much the same as hospitals supply
My mouth is major dry, more so in bed, but I do take the biotene gel and spray I cannot sit in one position for very long a time, otherwise find it difficult to swallow my own spit. I am also very unstable on my feet and finding it hard to push myself out of bed in a morning. Hopefully this will change somewhat when the pureed meals arrive.
I am very thin and have lost a lot of weight, my other half is back at work tomorrow, and thanks to the ignorance of a social worker I’ll have carers in for just three hours out of a ten hour day and will have to open the door for each one
I do not care what any person says about my complaints; I am dying terminally ill and not sitting there to be abused by doctors and nurses alike. I dread to think of the ill treatment I will receive when I cannot talk walk or move or indeed speak up for myself at all, and so many folk wonder why I wish and often pray I was dead sooner
It is about time that terminally ill dying folk were heard and treat with the due respect they are due and not pushed aside and used as a scapegoat for erring staff doctors and nurses as also local Doctors alike
