DebbieRD
Member
- Joined
- Jan 18, 2020
- Messages
- 11
- Reason
- PALS
- Diagnosis
- 08/2019
- Country
- US
- State
- MA
- City
- Natick
Im writing for emotional and sharing support. Today my PEG fell out. What a drag! In an instant so much unpleasantly unfolded: surprise, scrambling to an ER, having to hurry when i cant, uncomfortable with the unknown. It was not easy for the doctors to get a new one in. Second attempt worked. To spend the day in the ER on top of already managing so many ALS symptoms, worried about how this would unfold, when i would get nourishment? It was a lot. Im glad its over. I celebrated by buying ice cream for some worried family members and me.