lisaann1170
Distinguished member
- Joined
- Jun 9, 2009
- Messages
- 106
- Reason
- Loved one DX
- Country
- US
- State
- WI
- City
- Milwaukee
This is a long shot, but I thought I'd give it a try anyway!
Dad had an ileostomy way back in 1977 (as a result of ulcerative colitis) and had the majority of his intestines removed. We're working with his ALS neurologist and a gastroenterologist to see if they can make a PEG tube work. Dad tells me the neuro said a PEG won't work, but I think he misunderstood or simply wants me to believe it won't work because he is REALLY dreading this. Afterall, who would want two substantial abdominal incisions?!
If I understand all correctly, the PEG tube goes directly to the stomach while the ostomy re-routed the intestines. He may have to be more cautious of how much is inserted into a feeding tube at one time because the distance from A to B is quite short, but I can't imagine this CAN'T work.
So, has anyone heard of anyone with an ostomy and ALS? Similarly, has anyone heard of a feeding tube NOT being an option for a PALS?
Thanks!
Dad had an ileostomy way back in 1977 (as a result of ulcerative colitis) and had the majority of his intestines removed. We're working with his ALS neurologist and a gastroenterologist to see if they can make a PEG tube work. Dad tells me the neuro said a PEG won't work, but I think he misunderstood or simply wants me to believe it won't work because he is REALLY dreading this. Afterall, who would want two substantial abdominal incisions?!
If I understand all correctly, the PEG tube goes directly to the stomach while the ostomy re-routed the intestines. He may have to be more cautious of how much is inserted into a feeding tube at one time because the distance from A to B is quite short, but I can't imagine this CAN'T work.
So, has anyone heard of anyone with an ostomy and ALS? Similarly, has anyone heard of a feeding tube NOT being an option for a PALS?
Thanks!