- Feb 27, 2009
- Loved one DX
Earlier I had posted that my mother had either PBP or Primary Progressive Aphasia, although she still does not have a clear diagnosis due to negative EMGs, I feel she has PBP. After reading everyone else's signs and symptoms on this forum I am convinced she has PBP. It started in May 08 with slowing of speech to not being able to understand her at all. Although her swallow tests have been negative, she struggles to eat food, she is constantly choking on her saliva. I communicate with her through pen and paper. I looked at the Proloquo2go but I feel that since my mother is not technologically savvy she will get frustrated by it. Pen and paper works for us. I even tried to teach her sign language alphabets but she refused to learn. My biggest concern is her choking on her saliva and tomorrow I am going to an ENT specialist with her and getting a Botox injection in her salivary glands. Have any of you had this procedure done and if so what kind of results have you had? Also does anyone else have the same symptoms as my mother? I feel really helpless watching her go through this and don't know what I can do to help her. Any advice will be appreciated.