PBA

Emanol

Active member
Joined
Apr 3, 2018
Messages
60
Reason
Loved one DX
Diagnosis
09/2017
Country
SP
State
NY
Hello!

Back in this forum after a few months! My dad has been steady: UMN signs progressing and no LMN signs as of yet.

I am writing to you to ask for advice regarding the management of Pseudo-Bulbar Affect. My dad´s outbursts of laughing and crying have been getting worse and it is starting to interfere with his daily life -he loves going to the cinema and to the theatre but he is ashamed because sometimes he starts to cry or laugh uncontrollably.

Do people have advice to keep PBA under check? Anything -from meds to tricks- would be appreciated.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,623
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
Can you get Nuedexta there? If you can and he has no medical contraindication it is the treatment of choice. It may not completely take it away but most find it helps a lot. Also some ( anecdotally and in a trial) find it temporarily helps with swallow
 

Emanol

Active member
Joined
Apr 3, 2018
Messages
60
Reason
Loved one DX
Diagnosis
09/2017
Country
SP
State
NY
Thank you. I´ll ask the neurologist when we have the next appointment.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,623
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
If it isn’t soon can you call? PBA really is miserable
 

nona

Distinguished member
Joined
Oct 1, 2018
Messages
140
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
I second that and encourage you to call for a prescription. I went on it early and had to come off it for about six weeks this winter when my insurance company questioned my need. I was a mess until I started back on it. I hope you can get it, and that it helps.
 
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