Patient letter in NY Times re "possible cause of ALS"

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Lobster

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An excellent letter:

September 5, 2011

Another A.L.S. ‘Holy Grail’ (1 Letter)

To the Editor:

Re “Possible Culprit Is Found for Lou Gehrig’s Disease” (In Theory, Aug. 30): This excellent article on a devastating disease has some troubling observations. Not the least of these is a researcher’s statement that the “holy grail” of research is to find a common molecular cause of A.L.S. As someone living with A.L.S., I would hope that the holy grail would be finding effective treatments. As the article points out, we are far away from drugs that might address any of the theories about the mechanism of A.L.S. Until we get there, maybe the scientists should talk among themselves and stop driving up the hopes of desperate patients.

Barbara A. Brenner
San Francisco
 
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trfogey

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I'll give Barbara Brenner credit -- she's sticking to her guns, despite all the feces being flung her way by folks in the ALS community.
 
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