chriss
Active member
- Joined
- Apr 30, 2010
- Messages
- 77
- Diagnosis
- 01/2009
- Country
- AU
- State
- victoria
- City
- greenvale
To say that my dear sweet husband Shane Grant passed away September 8th. He was 52 years of age. I want to say thankyou to those people we corresponded with and also thankyou to the administrators for making this site available. We felt so isolated and simply just being able to log in and read about people going through some of the same things that we were going through helped a great deal.
Unfortunately my husbands passing was traumatic and terrible. My only comfort is that I managed to keep him home until the end which is what he wanted.
I met Shane on the internet in March 2008. We had a brief happy normal life as a couple til Jan 2009 when he was diagnosed with ALS. We married May 2010. When we married we had to have the ceremony in our bedroom and he was on the BiPAP 24/7. We had special permission for him to sign the wedding certificate with a finger print as his hands no longer moved. When we met I said I came with three teenage children and he said "well I don't scare easily" and true to his word he didn't. He was a wonderful father and husband and it broke my heart to see him suffer while still trying every day to be positive and to think of us and our needs. He did not want to leave this world and we fought so hard for him to stay.
When we had the funeral I was asked to choose three songs. One for when we were all getting seated, one in the middle and one as the casket was lowered. He had a wicked sense of humour. So the first song was Johnny Cash's "burning ring of fire" just for those in wheelchairs if you get my meaning. The second song was a peaceful song by Israel Kamakowiwo "Somewhere over the rainbow" and the last song as the casket was lowered was from me to him and it was Roberta Flacks "The first time ever I saw your face". I had an open casket just for the immediate family and I am glad I did as he looked so at peace. The trauma from his illness had left his face and I had a different memory to take away with me instead of how he looked when he passed away. I got to kiss him one last time and funny thing is I half expected him to open his eyes and smile back at me. Isn't that silly. People have said it was a beautiful service and that has comforted me greatly.
Sleep sweet Shane
Unfortunately my husbands passing was traumatic and terrible. My only comfort is that I managed to keep him home until the end which is what he wanted.
I met Shane on the internet in March 2008. We had a brief happy normal life as a couple til Jan 2009 when he was diagnosed with ALS. We married May 2010. When we married we had to have the ceremony in our bedroom and he was on the BiPAP 24/7. We had special permission for him to sign the wedding certificate with a finger print as his hands no longer moved. When we met I said I came with three teenage children and he said "well I don't scare easily" and true to his word he didn't. He was a wonderful father and husband and it broke my heart to see him suffer while still trying every day to be positive and to think of us and our needs. He did not want to leave this world and we fought so hard for him to stay.
When we had the funeral I was asked to choose three songs. One for when we were all getting seated, one in the middle and one as the casket was lowered. He had a wicked sense of humour. So the first song was Johnny Cash's "burning ring of fire" just for those in wheelchairs if you get my meaning. The second song was a peaceful song by Israel Kamakowiwo "Somewhere over the rainbow" and the last song as the casket was lowered was from me to him and it was Roberta Flacks "The first time ever I saw your face". I had an open casket just for the immediate family and I am glad I did as he looked so at peace. The trauma from his illness had left his face and I had a different memory to take away with me instead of how he looked when he passed away. I got to kiss him one last time and funny thing is I half expected him to open his eyes and smile back at me. Isn't that silly. People have said it was a beautiful service and that has comforted me greatly.
Sleep sweet Shane