Hi I am 26 T4 parapaligic female. I am extremely worried I have ALS but I cant see a nurologist for a month due to insurance. As I said I am a T4 Parapaligic and have been in a wheelchair my whole life. Last September 2010 I started thinkingmy legs looked smaller almost atrophyed from my feet to below my knee but I was trying to lose weight and my disability so I didnt think too much my husband said my butt was also getting smaller I must mention usually my feet and legs are purple and swollen with my disability most my friends legs atrophyed due to their disability when they were much younger but now they are no longer swollen and to me look smaller but no way to tell I recently started measuring to check...in October the 16th I recieved a Depo shot and my flu mist and 2 weeks later I was feeling shortness of breath and chest pains I went to the ER 4 times no pulmenary emboli then I was admitted for constipation 1 night at the end of November all my vitals were good i had a heart monitor on they seemed normal because no one got concerned. I went to my PCM and mentioned I had a weakness feeling in my arms he tested my strength and said my strength seemed fine.the weakness went away for awhile then 2 weeks ago my pain in my chest lessened but I developed a raspy vry dry cough I can only cough when i fill my lungs like im going to hold my breath. my shortness of breath is minimal my dr rx gulsaisan I finished it but still have the cough then a week ago I started having extreme fatuige in my upper arms and back of my neck upper back mainly shoulder blades and between them if I leave my neck straight for too long it feels as though the back of my neck twitches and is weak. the next day I had twitching in both my arms mainly noticible at rest or sleeping. then 2 more days and twitching in my face mainly lips cheeks and eyes then another 2 days and now im having problems swallowing as well feels like a lump in my throat clear liquids seem ok but food is hard. all my twitching in the face has increased with my forehead twitching and increased lip and mouth twitching. My tounge moves fine I can roll it and move it back and forth fine i dont think my tounge is twitching but twitching in my arms have stayed the same mild and my sore muscles are still sore my neck think is only on the back of my neck. I can still dress and brush my hair fine although ties my muscles a bit and I can open jars I can also still transfure from floor to chair using my arms. Please HELP I am so scared my Dr said he wasnt sure what it is but wanted me to see a nurologist because it could be ALS his exact words however he wasnt sure how they could test with my spinal cord injury at the t4 level and I cant tell what my legs feel like...does this really sound like ALS and will tests be inconclusive due to my disability? Thank you in advance for any help