PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

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KimT

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Nov 18, 2014
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08/2015
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South
City
The Beach
All well in rainy Florida! We are getting some much needed rain....just hope they turn the pool heater back on.
 

[email protected]

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Jan 3, 2016
Messages
296
Reason
PALS
Diagnosis
11/2015
Country
US
State
Iowa
City
Iowa City
Back late Monday night from our 3 week Norwegian and Baltic cruise, which we on the whole enjoyed--the food was excellent and the ship (Konigsdam of Holland America) very accommodating for my mobility issues. We carried a manual wheelchair for use on land and rented a scooter for onboard use--very helpful. My wife struggled wheeling me on cobblestones and up inclines/over curbs. We saw some interesting cities we'd never been to (Helsinki, Tallinn, Stockholm and many others), if only briefly. Having traveled before ALS making our own arrangements and staying in a small area for an extended time, the rigidity of the cruise schedule was hard to adjust to (6 hours in Copenhagen, 7 in Helsinki, e.g.). Nice to have meals taken care of, and no need to unpack and repack. Met some nice people--lots of Dutch and Aussies. My legs continue to weaken, but other ALS symptom seem to have remained stable. Thankfully I was able to enjoy the good food. If we do another I think we'd try to make independent arrangements for shore excursions, rather than relying on the cruise company, and pick an itinerary that focused on natural surroundings (like Alaska) rather than cultural centers.

Ed
 
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DaChief

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Joined
Dec 6, 2016
Messages
191
Reason
PALS
Diagnosis
12/2016
Country
US
State
Florida
City
West Melbourne
Up at the Mayo today. Lots of rain here in FL for the last few days but we need it. Hope everyone has a good week
 

WendyWooG

Senior member
Joined
Jan 10, 2016
Messages
518
Reason
PALS
Diagnosis
07/2016
Country
Uk
State
Hertfordshire
City
Stevenage
Had a lovely weekend with my eldest daughter and granddaughter staying so that my very tired husband could get away for the weekend to the seaside and have a break. So we both hit Monday feeling chilled and relax.

Smiles from a happy Wendy

Hopefully I have managed to attached a picture of my granddaughter such a gorgeous little pickle :)
IMG_0331.jpg
 

Ed340hp

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Joined
Jun 28, 2015
Messages
114
Reason
PALS
Diagnosis
05/2015
Country
US
State
California
City
Long Beach
I am still hanging around. We are planning a trip to Texas after our kid's school is out, and I expect a bumpy week. The good aspect will be family and beer for fathers day.
 

chally

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Joined
Apr 23, 2015
Messages
1,255
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
City
renick
Last day of a very restful four day stay in a " grand old hotel"
Pictures don't do the trees on the grounds justice, some are 6 ft across!
 

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frankb

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Joined
Jun 8, 2011
Messages
578
Reason
PALS
Diagnosis
10/2010
Country
US
State
Georgia
City
Sandy Springs
Hard to believe that June is half gone already. The roses are still smelling fine. Hang in there, fellow journey members.
 

Gotty

Active member
Joined
Nov 24, 2015
Messages
33
Reason
PALS
Diagnosis
11/2015
Country
CA
State
ON - Ontario
City
Toronto
Still here and thrilled I made it for a Wednesday posting.
Best to all for a super week ahead!!:D
Margot
 

Gotty

Active member
Joined
Nov 24, 2015
Messages
33
Reason
PALS
Diagnosis
11/2015
Country
CA
State
ON - Ontario
City
Toronto
Awesome trees!!
 

bkite

Distinguished member
Joined
Sep 2, 2016
Messages
129
Reason
PALS
Diagnosis
06/2013
Country
US
State
Washington
City
Yakima
Hi! Doing well. Every day that I wake up, is a good day!
______
Bruce
 

FrJn

Active member
Joined
Mar 12, 2015
Messages
69
Reason
PALS
Diagnosis
04/2016
Country
US
State
Somewhere
City
Small Town
Hi all!! It's just me again!

Clinic went well yesterday and I'll be on vacation and out of state next week. I'm oh so looking forward to that time "off".

I'll check in again when back from vacation.

Y'all take care, ya hear?

John
 

DaChief

Distinguished member
Joined
Dec 6, 2016
Messages
191
Reason
PALS
Diagnosis
12/2016
Country
US
State
Florida
City
West Melbourne
Wednesday here again (that's a good thing). Been picking out tile, sinks, vanities etc for our bathroom redo. What a pain! Leave next Monday for our Rhine cruise in Europe so have been humping this week.

Bruce
 

KimT

Extremely helpful member
Forum Supporter
Joined
Nov 18, 2014
Messages
4,148
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
Skipped my ALS Support Meeting today because it was sunny and the pool was 86 degrees. I was in for a whole hour.
 

swalker

Very helpful member
Joined
Dec 11, 2014
Messages
1,340
Reason
DX MND
Diagnosis
07/2014
Country
US
State
CO
City
Vail
We arrived home from our trip to Yellowstone yesterday. I am beat and taking it really easy for a few days as I try to recover. It was a great and interesting trip. I will write a post about it in a few days.

Steve
 

Sprawl

Active member
Joined
Dec 5, 2015
Messages
35
Reason
PALS
Diagnosis
01/2016
Country
US
State
ND
City
Burlington
Don't check in as often as i should, but i am still doing ok. Just got back from another 3 month evaluation today. Respiratory still above normal, and did swallow fluoroscopy which went well. They said i have some slowness and twitching in my tongue but that was all. legs are still progressing, strength in feet/ankles is great but am experiencing minor drop foot in right when walking, they think it just fatigues super fast so they are getting me an afo. Right arm is useless, and left feels to be starting early signs. Speech is good yet. All things considered i feel i am doing well.
 
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