Ok, everybody, you beat me to the punch. So glad to see folks checking in.
Eric, Cholly was a real treasure, as was Karen and so many others. I miss them all terribly as I look back on my first posts in March 2019. I hate this disease.
I’m okay, but as Eric said the mental stress of knowing all my joint and muscle pain and slow but steady weakening will never improve and continue to get worse eats away at me. Focusing on what I can still do and being thankful for that only goes so far. And I’m like Lisa re: Nurown. Really was skeptical of all the hype (though I desperately wanted to believe), so I’m not as devastated as many in our tribe.
Though the weather here is gorgeous, it has been tough to enjoy the past couple of days. My wife, who is an assistant teacher for middle school special needs kids, is in the middle of another COVID scare. The main teacher she works with became ill over the past weekend, and tested positive. Thankfully, they sit on opposite sides of the class, are always masked, and her close contact is limited to a few seconds each day exchanging papers.
She was cleared by the health department because she did not have close contact for a cumulative total of 15 minutes on Thursday and Friday, and she was off work last Tuesday and Wednesday, so her exposure during the likely period the teacher was most contagious was limited. We are monitoring closely and hoping with all our might that she didn’t contract it.
And I just got done finishing up a root canal on my lower molar that was infected. My endodontist had recommended extraction last month when he did a partial root canal and I went to my regular dentist last week planning to get it pulled. However, he examined it, saw that the infection was basically gone, and given my slow healing/weakened immune system, said if it were him he would finish the root canal, seal the tooth, and go from there. I was all for that, since I have enough ALS pain without inflicting more pain and possible complications from an extraction. Hope it works.
So right now I’m sitting on the porch dribbling beer out of my numb mouth, waiting for my nervous wife to get home and hopefully tell me she still feels fine. Keep going everyone...I need each and every one of you. Kevin