Feeling emotionally better this week, after getting my second confirmed diagnosis. I still have about a month before my EMG to *hopefully* stay PLS, so I’m trying to just maintain some normalcy and sanity until then. I watched the Social Dilemma on Netflix which quickly had me getting off of social media and I’m much happier for it LOL. (Although I do check the ALS/PLS pages from time to time.)
I’m still trying to find a good balance when it comes to my physical issues. I find that on “good” days I tend to overdo it and then I pay for it the next couple of days with feeling tighter and weaker. My mind and body want to do two different things. It’s frustrating! Also, sitting is not my friend. Because of weight loss and atrophy on my bottom, I’m starting to hurt quite a bit. I got a Roho pillow, which helps, but I think I’ve done a little damage in the process so I’ve been doing a lot of side sitting.
We’re in a pretty good routine now with distance learning. My high schooler can do it, no problem. My 6-year-old requires help logging in and out, which is required several times a day, so that keeps me busy! I also have to constantly check on her because she likes to act silly on camera, which could lead to trouble with the teacher LOL...
I’m in Central California near the Creek Fire, which I think they said is now the largest ever in California’s history. The air has cleaned up a lot, but still not great.
And now I really want a beer....I was going to say you all are bad influences, but in our case, it’s a good influence! HAHA!