lisa g
Senior member
- Joined
- Apr 17, 2019
- Messages
- 707
- Reason
- PALS
- Diagnosis
- 04/2019
- Country
- US
- State
- FL
- City
- Fort Pierce
Another Wednesday has come around. I have so much going on my head is spinning.
Last month Dr Benatar ordered genetic testing. I just received a call that the results are back. I'm scheduled for a Telehealth with him on Tuesday to go over the results.
I just received my voice recorder from the Gleason foundation to start voice banking. I have a Telehealth set up with my speech therapist at UA Miami to start that up. I was also advised by the therapist to get a voice amplifier to save energy from trying to project my speech. Just received my microphone so I'll start playing with that.
Then Friday next week I go for my first pulmonary function test to get a baseline. In between all this I'm finishing my 4th cycle of Radicava and make sure that I go in the pool everyday to do laps, stretching and ROM. Hopefully things will settle down.
Hope all are enjoying today. Sending my thoughts and prayers to anyone that is being affected by hurricane Sally.
Last month Dr Benatar ordered genetic testing. I just received a call that the results are back. I'm scheduled for a Telehealth with him on Tuesday to go over the results.
I just received my voice recorder from the Gleason foundation to start voice banking. I have a Telehealth set up with my speech therapist at UA Miami to start that up. I was also advised by the therapist to get a voice amplifier to save energy from trying to project my speech. Just received my microphone so I'll start playing with that.
Then Friday next week I go for my first pulmonary function test to get a baseline. In between all this I'm finishing my 4th cycle of Radicava and make sure that I go in the pool everyday to do laps, stretching and ROM. Hopefully things will settle down.
Hope all are enjoying today. Sending my thoughts and prayers to anyone that is being affected by hurricane Sally.