razberri
New member
- Joined
- Mar 24, 2012
- Messages
- 2
- Reason
- Loved one DX
- Country
- Aus
- State
- WA
- City
- Ballajura
Hello! I thought I'd join hoping to find out more about this disease and how people cope with it.
My cousin got sick a few years back and, a few years later, finally heard the diagnosis of ALS. She's now bed ridden and not speaking, but can breathe on her own and, most importantly, can still smile.
It's really difficult for me having a cousin with ALS. I want so much to help her, but I hardly know anything about her disease or how she is dealing with it. She's not the type to complain about her own problems. The trick here is that she lives in Poland, I live in Australia. For a while I wondered why she doesn't really respond to me over facebook, etc. I had no idea she was typing with her eyes.....
So I guess I'm here to learn, so that I might find ways to support my cousin somehow. It's difficult not knowing any details, but maybe I'll know what questions to ask...
So hello! And I look forward to meeting you all.
My cousin got sick a few years back and, a few years later, finally heard the diagnosis of ALS. She's now bed ridden and not speaking, but can breathe on her own and, most importantly, can still smile.
It's really difficult for me having a cousin with ALS. I want so much to help her, but I hardly know anything about her disease or how she is dealing with it. She's not the type to complain about her own problems. The trick here is that she lives in Poland, I live in Australia. For a while I wondered why she doesn't really respond to me over facebook, etc. I had no idea she was typing with her eyes.....
So I guess I'm here to learn, so that I might find ways to support my cousin somehow. It's difficult not knowing any details, but maybe I'll know what questions to ask...
So hello! And I look forward to meeting you all.