BetsyB
Active member
- Joined
- Apr 6, 2016
- Messages
- 96
- Reason
- PALS
- Diagnosis
- 04/2016
- Country
- IL
- State
- AA
- City
- hadarom, israel
hello all,
i have limb onset that has now progressed to where even a little walking is very tough. my voice is weakening and i am laughing and crying too much. i take herbal medicine for the crying. i also see a therapist once a week and am making a great effort at self-caring and fun projects. my family is also accessing mental health care. i have an excellent filipina caregiver 24/6. i am receiving a full measure of govt benefits.
despite all of this, i am frequently distraught from frustrations with my decaying motor abilities or when i fail to effectively communicate my needs. my caregiver says 'don't cry.' one of my kids, age 13, says 'shut up,' and another kid, age 21, becomes exasperated and walks off in a huff, demanding i be compltely calm before he will help me. i try with all my might to stay calm, but often can't.
the pressure on me is intense. it seems unfair. what do u think, PALS and CALS? is it fair? what solutions can u suggest. maybe mellow with some cannabis...legal here...but then must stop working....
aside from anti-depressants, as i am very clearly not depressed, what can u suggest.
i have limb onset that has now progressed to where even a little walking is very tough. my voice is weakening and i am laughing and crying too much. i take herbal medicine for the crying. i also see a therapist once a week and am making a great effort at self-caring and fun projects. my family is also accessing mental health care. i have an excellent filipina caregiver 24/6. i am receiving a full measure of govt benefits.
despite all of this, i am frequently distraught from frustrations with my decaying motor abilities or when i fail to effectively communicate my needs. my caregiver says 'don't cry.' one of my kids, age 13, says 'shut up,' and another kid, age 21, becomes exasperated and walks off in a huff, demanding i be compltely calm before he will help me. i try with all my might to stay calm, but often can't.
the pressure on me is intense. it seems unfair. what do u think, PALS and CALS? is it fair? what solutions can u suggest. maybe mellow with some cannabis...legal here...but then must stop working....
aside from anti-depressants, as i am very clearly not depressed, what can u suggest.