Katalin
Distinguished member
- Joined
- Sep 22, 2018
- Messages
- 114
- Reason
- Lost a loved one
- Diagnosis
- 05/2018
- Country
- CA
- State
- Ontario
- City
- Toronto
Hello, all,
Anyone else have the experience of their PAL losing their sense of taste? Today I asked my mother how she liked the new seedless jam I got her. She said she had no idea. She can't taste most of her food. She did not have bulbar onset, but she is starting to have more bulbar symptoms. I can actually hear her swallowing, and it's hard for her. She is super careful and not choking on food, but sometimes on saliva. Her food is pocketing in the outside of her lower jaw, and she uses a finger to clear it out. An old closed thread mentioned that some PALs need more salt or sugar to "taste" their food.
Any suggestions, and is this a normal progression? I know, I know, what a question, is this normal...it's so different for everyone. Thoughts appreciated.
With thanks in advance,
Kathy
Anyone else have the experience of their PAL losing their sense of taste? Today I asked my mother how she liked the new seedless jam I got her. She said she had no idea. She can't taste most of her food. She did not have bulbar onset, but she is starting to have more bulbar symptoms. I can actually hear her swallowing, and it's hard for her. She is super careful and not choking on food, but sometimes on saliva. Her food is pocketing in the outside of her lower jaw, and she uses a finger to clear it out. An old closed thread mentioned that some PALs need more salt or sugar to "taste" their food.
Any suggestions, and is this a normal progression? I know, I know, what a question, is this normal...it's so different for everyone. Thoughts appreciated.
With thanks in advance,
Kathy