Marieb425
Active member
- Joined
- Jun 24, 2022
- Messages
- 96
- Reason
- CALS
- Diagnosis
- 08/2022
- Country
- US
- State
- WA
Hi Everyone,
My husband just told me that he choked on water today. He was diagnosed the end of august with limb onset, but then started having more tongue weakness and slurred speech. When we went to his ALS clinic appointment in October I asked the doctor if these symptoms means he has Bulbar ALS and he said it’s “limb onset with bulbar involvement.”
We’re young (he’s 40) and he’s at home alone during the day because I’m at work and he’s still working from home. I asked if he was coughing and he showed me what it was like and it was definitely like choking. Then he said it ended and he could breathe again.
Eating - is slow going but he’s still been eating foods and I’ve been incorporating more soft foods and soups. Does anyone have advice? I don’t want him to experience this when he’s home alone. Thank you.
My husband just told me that he choked on water today. He was diagnosed the end of august with limb onset, but then started having more tongue weakness and slurred speech. When we went to his ALS clinic appointment in October I asked the doctor if these symptoms means he has Bulbar ALS and he said it’s “limb onset with bulbar involvement.”
We’re young (he’s 40) and he’s at home alone during the day because I’m at work and he’s still working from home. I asked if he was coughing and he showed me what it was like and it was definitely like choking. Then he said it ended and he could breathe again.
Eating - is slow going but he’s still been eating foods and I’ve been incorporating more soft foods and soups. Does anyone have advice? I don’t want him to experience this when he’s home alone. Thank you.