PALS chat thread ( PALS only please)

Signe

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Joined
Aug 17, 2017
Messages
61
Reason
PALS
Diagnosis
04/2019
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US
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IA
Sounds wonderful, if I can I will do it. I love to travel. So happy for you and even happier that you were treated well.
 

Signe

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Joined
Aug 17, 2017
Messages
61
Reason
PALS
Diagnosis
04/2019
Country
US
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IA
Signe, you should take a cruise. I can only speak for our experience, but Norwegian Cruise Lines was exceptionally accommodating for me in a wheelchair. Every place we went on board, staff were there to help my husband and I with anything we needed. Our stateroom was ADA fully accessible with no extra charge. We only had one hiccup upon departure from the ship when there was no handicapped accessible transportation to the airport available.
We had excursion choices that I could easily attend. The cruise arranged special transportation for me at each stop. I saw almost everything any guest would like to see. No hiking or kayaking though!:(
Another question, how was the food on the cruise. I'm bulbar onset so my swallowing is my worst nightmare. I was wondering if they can accommodate different diets.
 

blitzc

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Joined
Apr 20, 2018
Messages
171
Reason
PALS
Diagnosis
01/2018
Country
US
State
OH
Another question, how was the food on the cruise. I'm bulbar onset so my swallowing is my worst nightmare. I was wondering if they can accommodate different diets.
They were very accommodating on menu options and asked constantly if there were any allergies. It's a good question about something special like a soft diet. I must say there were so many options available-never even came close to trying all the places. We only had a few disappointing items among the vast array-something for everyone. There were six of us and and a few were picky and not adventurous. Everyone in our group was pleased.
 

Signe

Active member
Joined
Aug 17, 2017
Messages
61
Reason
PALS
Diagnosis
04/2019
Country
US
State
IA
They were very accommodating on menu options and asked constantly if there were any allergies. It's a good question about something special like a soft diet. I must say there were so many options available-never even came close to trying all the places. We only had a few disappointing items among the vast array-something for everyone. There were six of us and and a few were picky and not adventurous. Everyone in our group was pleased.
Thank you. I decided that if I fly again I will have to get a "special meal", I did get very hungry being not able to eat what was on the menu.
 

KimT

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Extremely helpful member
Joined
Nov 18, 2014
Messages
3,354
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
I have a busy week ahead. Both my brother and I have birthdays this week. His wife called me to see if we wanted to get together and go out to eat. This is the first year they will be full-time Florida residents. My card friends want to do something for me on my actual birthday and Fred wants to go to Orlando on Tuesday. We both need new office chairs. I bought mine nearly 20 years ago at a place called Relax the Back. Fred had lower back issues so he really needs a chair. Then he wants to go to a huge mall. I'll certainly take my walker. I'm glad it has a basket and a seat.

I'm also selling some furniture that I've had for years and replacing it with a pretty matching set of Stressless. Our local dealer had huge discounts this week.

I got a manicure today and a new bra. Gawd......36 D. Now I know what my mother went through. She had a 23 inch waist and a 36 D top when she was skinny. I will NEVER measure my waist again nor my hips. I just want to be comfortable.

Enjoy what you can, when you can, however you can.

Hoping for a hurricane-free season. September is the month with the most potential for hurricanes. We've had very little rain this Summer.
 

lisa g

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Joined
Apr 17, 2019
Messages
69
Reason
PALS
Diagnosis
04/2019
Country
US
State
Florida
Happy early Birthday 🎂 Kim. Like you I have a birthday this week sharing the day with one of my grandsons and a good friend. It's going to be a busy week between lunches with friends and dinner with family.

I'm still adjusting to my weight gain, seems pants seem tight around the waist. Thank god for sundresses I'm living in them. ;)

We are definitely praying for a light hurricane season. My husband won't leave the state until season ramps down. Hoping it gets quiet by October so we can go back up north for a few months. Keep 🤞that the next couple of weeks go easy with the weather.
 

Signe

Active member
Joined
Aug 17, 2017
Messages
61
Reason
PALS
Diagnosis
04/2019
Country
US
State
IA
Happy Birthday to Kim and Lisa. Have a great birthday and enjoy everything.!!!
 

KevinM

Active member
Joined
Mar 30, 2019
Messages
56
Reason
PALS
Diagnosis
06/2019
Country
US
State
FL
Happy early Birthday 🎂 Kim. Like you I have a birthday this week sharing the day with one of my grandsons and a good friend. It's going to be a busy week between lunches with friends and dinner with family.

I'm still adjusting to my weight gain, seems pants seem tight around the waist. Thank god for sundresses I'm living in them. ;)

We are definitely praying for a light hurricane season. My husband won't leave the state until season ramps down. Hoping it gets quiet by October so we can go back up north for a few months. Keep 🤞that the next couple of weeks go easy with the weather.
Happy birthday to you both! Yes, we are really hoping for a quiet hurricane season too, especially after Michael last year. We were so shook by how close we came to what would have been catastrophic destruction here in Tallahassee that I just had one of our most beautiful loblolly pines removed near our house.

It was more than 120’ tall with a four foot diameter base, but it was a double, or split pine, with one trunk that split off into two full trees. These type trees have that inherent weak spot where they split. It was less than forty feet from the house, and it was a definitive house killer (and the people and pets inside) if it were to come down. I’m quite emotional these days, and I shed more than a few tears when the majestic tree came down. I hate killing anything. Kevin
 

lisa g

Active member
Joined
Apr 17, 2019
Messages
69
Reason
PALS
Diagnosis
04/2019
Country
US
State
Florida
Kevin it is so sad when you have to remove a piece of nature, but it gets down to your safety or a tree I vote for you. We recently had to take down 2 trees ourselves for the same reason. I guess it's the price we pay to live here. In 1985 I lived on Long Island in NY when we were hit with hurricane Gloria. I lived 3 blocks off the LI sound it was a beautiful tree lined area lots of big old oaks lined the streets. On my block the trees all fell in the same direction. The one that should have fallen on my house at the last minute turned the opposite way and went onto my neighbors house. Knocked the house a couple of inches off his foundation. Luckily since living in Florida I haven't had any damage from the hurricanes even though with Francis and Jean we took the direct hits in Fort Pierce. Hurricane season is always a nail biter.
 

KarenNWendyn

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Joined
Jul 29, 2017
Messages
2,361
Reason
PALS
Diagnosis
07/2017
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State
OR
Fingers crossed this will be a mild hurricane season for you in he south and east coast areas. In Oregon and California, we’ve actually had a relatively mild fire season so far (knock on wood).

I completely relate to the angst in removing a beautiful tree. We had to remove a pine last year to accommodate the wheelchair ramp we had built leading to our front deck. However we re-landscaped the terrain around that ramp and were able to put in a very sweet dwarf Chinese elm. It’s a delight to look at it every time I ride my chair up the ramp.
 

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blitzc

Distinguished member
Joined
Apr 20, 2018
Messages
171
Reason
PALS
Diagnosis
01/2018
Country
US
State
OH
ALS Association Northern Ohio Chapter Walk today in Akron. My family including husband, son, daughter, and mother were joined by several very good friends. More pictures to follow, but here is one of my mother, daughter, and I.
IMG_04901.jpg
 
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