- Feb 22, 2008
- New Mexico
Does anyone experience this? My husband has bulbar onset of ALS for 2 years now. He has a lot of pain and takes several pain killers throughout the day. He is generally himself, but sometimes he forgets what we spoke about. But he also sometimes accuses me of doing things without his knowledge. It is very frustrating because I feel he doesn't trust me and he even says he doesn't. It's very hurtful. I'm trying not to get into arguments with him but tonight I lost it. He keeps accusing me of the same thing for over a month now even after we've discussed it but he seems to forget. I don't know if the ALS is causing this or if he is just being mean to me. I switched jobs to take care of him; I care for our 2 teen daughters, pay the bills, grocery shop, get the girls breakfast, off to school, make lunches, pick them up, take them to their activities, make dinner, wash clothes, work fulltime from home, deal with the doctor appts, hospice, and all the piling bills. My health has deteriorated through the past 2 years because I don't have time for myself. But, I'm generally upbeat, happy and joke a lot. I try to not let him rob me of my joy when he acts like this because then I get depressed, sad, and cry and then I can't do all the things I have to do. Anyone else going through the same thing?