- Joined
- Jan 31, 2019
- Messages
- 11
- Reason
- Loved one DX
- Diagnosis
- 10/2018
- Country
- US
- State
- Rhode Island
- City
- Providence
I joined this forum so I could be a support for my niece, who is caring for my sister with ALS. I received this request today and am hoping someone has insight to share. Thank you, in advance! "A few days ago, one of her aides identified a possible emerging pressure sore on her sacrum area (like where the base of her spine meets the top of her bottom). Since she’s having more trouble breathing/swallowing, she’s sleeping with her head more elevated at night - I think that may be contributing to this pressure point. Regardless, she’s starting to call me down to her room multiple times a night complaining of pain and pressure (and in other areas as well - her elbows, back, all over), and I don’t really know how to help her, especially since I can’t identify anything obvious (sheets and nightgown are smooth, skin looks fine, etc.). She tried an alternating pressure air mattress a few months ago and HATED it, but that’s the only suggestion I can find."