Mikeb1too
New member
- Joined
- Nov 28, 2022
- Messages
- 2
- Reason
- CALS
- Diagnosis
- 06/2022
- Country
- US
- State
- IL
- City
- PEORIA HEIGHTS
my sister has als and was diagnosed in june , she has steadily declined since then and is in pain all the time now , she is bed ridden and her son and myself have been taking care of her , she is on hospice and has been for two months , the first hospice nurse neglected to order her pain meds , and was pretty much all around neglectful and i asked for a different nurse , second nurse started off great and then forgot or just didnt order her pain meds twice now , is this a common thing ? it is heartbreaking to watch my sister screaming in pain because we have to give her less meds until the new meds get to her , i have called the hospice supervisor twice and she keeps telling us that not getting her pain meds is unacceptable and i agreed , i ask why this keeps happening but get no answer , i was told since she is on hospice this would be for comfort care and it has been anything but that , i hope this is not normal