- Joined
- Nov 18, 2014
- Messages
- 4,887
- Reason
- PALS
- Diagnosis
- 08/2015
- Country
- US
- State
- South
- City
- The Beach
The pain is now interfering with my time in the pool. I can still walk, still do things with my hands and arms and my speaking seems very close to normal. My breathing is still pretty good and I don't get out of breath in the pool but the pain in my back and knees is getting much worse.
I can no longer go on the treadmill for my 5 or 10 minutes because of pain. I can still raise up on my toes (most of the time) and walk on my heels.
I'm not sure if the pain is being cause my increased inactivity or my floating in the pool. I keep good posture in the pool and basically straddle the pool noodle and paddle with my arms. Sometimes I walk in the shallow end back and forth. I'm not even keeping up with the 90 year old people and it's not because of weakness. It's because of pain.
Yes, I've lost strength but it is a very slow loss and all my muscles are at least a 4. They all started out as 5+, with the plus meaning much stronger than the average woman.
Pete was respiratory onset and extremely strong but I remember he had pain from the very beginning.
I can't take enough THC to help because it makes me dizzy and gives me heart palpitations. CBD and Tylenol are what I'm using along with topical THC. Today I broke down and took 1/4 of an Oxy and an extra Valium just to get through the day.
In my last MRI (which my primary care thought I might have a ruptured appendix) I noticed that I had mild scoliosis (which I've had for years) and mild degenerative changes in the lumber spine.
I ended up buying a very expensive office chair to replace my old very expensive office chair along with a posture foot support to help me stay in good form on the computer. Thank goodness for my lift chair.
Does anyone else experience this kind of pain along with slow progression?
Mayo Clinic cannot agree on the cause. The neuro thinks it's fibromyalgia, the rheumy thinks it's structural and the ortho thinks it's neurological.
I can no longer go on the treadmill for my 5 or 10 minutes because of pain. I can still raise up on my toes (most of the time) and walk on my heels.
I'm not sure if the pain is being cause my increased inactivity or my floating in the pool. I keep good posture in the pool and basically straddle the pool noodle and paddle with my arms. Sometimes I walk in the shallow end back and forth. I'm not even keeping up with the 90 year old people and it's not because of weakness. It's because of pain.
Yes, I've lost strength but it is a very slow loss and all my muscles are at least a 4. They all started out as 5+, with the plus meaning much stronger than the average woman.
Pete was respiratory onset and extremely strong but I remember he had pain from the very beginning.
I can't take enough THC to help because it makes me dizzy and gives me heart palpitations. CBD and Tylenol are what I'm using along with topical THC. Today I broke down and took 1/4 of an Oxy and an extra Valium just to get through the day.
In my last MRI (which my primary care thought I might have a ruptured appendix) I noticed that I had mild scoliosis (which I've had for years) and mild degenerative changes in the lumber spine.
I ended up buying a very expensive office chair to replace my old very expensive office chair along with a posture foot support to help me stay in good form on the computer. Thank goodness for my lift chair.
Does anyone else experience this kind of pain along with slow progression?
Mayo Clinic cannot agree on the cause. The neuro thinks it's fibromyalgia, the rheumy thinks it's structural and the ortho thinks it's neurological.